Inchstones with Sarah | Autism Advocacy & Caregiver Stories

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• Beyond the Autism Diagnosis: Seeing the Child Before the Label | Dr. John Gaitanis 30.06.2026 39Min.

  What if autism isn’t one condition to treat, but many different biological stories waiting to be understood? In this episode of Inchstones, Sarah Kernion sits down with pediatric neurologist Dr. John Gaitanis to explore why autism care should begin with understanding the individual child—not simply the diagnosis. Together they discuss autism advocacy, root cause medicine, caregiver experiences, neurodevelopment, inflammation, motor planning, and why families often recognize important patterns long before medicine does. Dr. Gaitanis challenges the idea that autism is a single biological condition, explaining why many children share a diagnosis while presenting with remarkably different medical histories, developmental pathways, and support needs. He shares why physicians should focus on understanding each child’s unique biology, why systemic inflammation and developmental regression deserve closer attention, and how artificial intelligence may help uncover patterns that families have recognized for years. The conversation also explores the emotional side of neurodivergent parenting. Sarah and Dr. G discuss maternal pattern recognition, caregiver stress, nervous system regulation, sleep deprivation, and why supporting parents is inseparable from supporting autistic children. Whether you’re navigating a recent autism diagnosis, raising a child with profound autism, searching for autism therapy options, or simply looking for thoughtful autism advocacy grounded in curiosity rather than certainty, this episode offers a hopeful framework for asking better questions. In this episode: 03:10 — Why “autism” may describe many different biological conditions07:30 — Maternal pattern recognition and why caregivers often notice problems first10:05 — Systems thinking versus siloed medicine in autism care14:00 — Why two autistic children can have completely different biological profiles18:15 — Artificial intelligence and the future of autism diagnosis and personalized medicine21:05 — Whole-body dyspraxia, motor planning, and autism communication27:20 — How physicians can move beyond diagnostic labels to see the whole child35:45 — Caregiver burnout, chronic stress, and protecting parent health41:05 — Why trusting maternal intuition matters throughout the autism diagnosis journey Resources Learn more about Dr. John Gaitanis and Meadow BioSciences. Subscribe to the Inchstones Podcast for more conversations about autism advocacy, caregiver stories, neurodivergent parenting, profound autism care, and practical support for families raising autistic children. Read more caregiver essays on the Inchstones Substack.
• Autism Fatherhood: When My Son Brought Me to My Knees | Tommy of Spectrum in Camouflage 25.06.2026 32Min.

  What does autism teach a father about strength? In this episode of Inchstones, Sarah Kernion sits down with Tommy of Spectrum in Camouflage for an honest conversation about autism fatherhood, faith, mental health, and how raising a nonspeaking autistic son completely transformed his understanding of success, purpose, and what truly matters. When Tommy’s son Wyatt began losing language around age two and a half, everything he thought he knew about fatherhood changed. As a construction business owner, husband, and father, he spent years believing strength meant fixing problems. Autism forced him to discover a different kind of strength: presence, surrender, and learning to live one inchstone at a time. Together, Sarah and Tommy explore autism parenting, profound autism, fatherhood, caregiver mental health, marriage, faith, and the quiet transformation that often happens inside parents long before anyone else notices it. This conversation explores: * autism fatherhood* nonspeaking autism* profound autism* caregiver mental health* autism parenting and marriage* faith during difficult seasons* living in the present moment* autism advocacy* parenting beyond societal expectations* finding joy in inchstones instead of milestones Tommy also shares his experience navigating anxiety, depression, and the realization that while he could not fix autism, he could become a different father because of it. His story offers encouragement for autism dads, caregivers, and families searching for hope grounded in reality rather than false promises. ⸻ In This Episode 00:00 – Introducing Tommy and Spectrum in Camouflage02:00 – Becoming a father after years of waiting04:00 – Wyatt’s autism regression and losing language06:00 – Anxiety, mental health, and feeling powerless08:00 – The mountain where everything changed10:00 – Why autism brought Tommy to his knees12:00 – Faith, surrender, and finding purpose through autism15:00 – Success versus significance in fatherhood17:00 – The hidden expectations parents carry19:00 – Why inchstones matter more than milestones21:00 – Learning to see growth differently23:00 – Autism, communication, and presence beyond words25:00 – Living where your boots are: staying present today28:00 – Parenting typical and autistic children differently31:00 – Mental health, nervous system regulation, and resilience33:00 – Speaking openly so other autism dads feel less alone Listen to more episodes of the Inchstones Podcast, where Sarah Kernion shares caregiver stories, autism advocacy, profound autism experiences, neurodivergent parenting, and honest conversations that help families feel seen, understood, and less alone.
• Why Autism Moms Never Stop Listening for Footsteps with Libby Hudson 16.06.2026 28Min.

  What happens when years of caregiving, hypervigilance, grief, and responsibility finally catch up with a mother? In this episode of Inchstones, Sarah Kernion sits down with Libby Hudson for an unfiltered conversation about profound autism, marriage, caregiver burnout, grief, and what it takes to survive when your family’s needs seem bigger than your capacity to carry them. Libby and her husband Tyler Hudson have become respected voices in the profound autism community, but behind advocacy and awareness lies a deeply personal story. As their son Lyric entered adolescence, a devastating family loss triggered profound behavioral changes, escalating aggression, and years of living in a near-constant state of vigilance and fear. Libby shares what it felt like to lose her father, watch her son struggle to process grief he could not communicate, and navigate the impossible reality of loving a child while simultaneously fearing what dysregulation might bring next. Together, Sarah and Libby discuss: * profound autism and adolescence* caregiver burnout and nervous system exhaustion* grief and autism* marriage under chronic stress* maternal hypervigilance* supporting autistic adults* emotional collapse and resilience* the importance of asking for help* finding purpose after survival mode The conversation also explores something rarely discussed openly in autism spaces: the cost caregiving can have on a mother’s body, identity, relationships, and health. Libby shares how years of accumulated stress ultimately contributed to a stroke and the difficult changes her family had to make to survive. This episode is for autism moms, caregivers, and families navigating profound autism, aggression, caregiver burnout, marriage stress, grief, and the emotional realities that often remain hidden behind advocacy. In This Episode 00:00 – Living with constant hypervigilance and caregiving stress02:00 – Reading nonverbal communication through behavior and body language04:00 – The death of Lyric’s grandfather and profound grief05:30 – When autism, adolescence, and loss collide07:00 – Aggression, dysregulation, and fear inside the home08:30 – The emotional toll of surviving crisis mode10:00 – Why caregiving changed Libby’s health forever11:30 – A stroke, burnout, and the body keeping score13:00 – Marriage under pressure and redefining family roles15:00 – Learning to ask for what you need17:00 – Why flexibility matters in autism families19:00 – Autism, relationships, and nervous system regulation21:00 – The hidden emotional labor of autism motherhood23:00 – Why support systems matter more than services alone25:00 – Receiving an autism diagnosis 18 years ago27:00 – Grief, acceptance, and adapting to reality29:00 – The lessons profound autism has taught about life and love31:00 – What makes Libby most proud as Lyric’s mother Listen to more episodes of the Inchstones Podcast, where Sarah Kernion shares caregiver stories, profound autism experiences, autism advocacy, and honest conversations about neurodivergent parenting.
• Horses, Autism, and the Healing Power of Nature | Dana Spett of Pony Power Therapies 11.06.2026 26Min.

  What happens when autism support moves beyond four walls and into nature? In this episode of Inchstones, Sarah Kernion sits down with Dr. Dana Spett, founder of Pony Power Therapies, to explore autism, sensory regulation, equine-assisted services, and why connection, movement, and nature can create powerful opportunities for growth. Dana’s journey began as a mother searching for support for her own daughter. What started with one horse and four riders has grown into Pony Power Therapies, a community-centered organization helping children and adults with disabilities connect with horses, farming, nature, and themselves. Together, Sarah and Dana discuss autism parenting, sensory regulation, maternal intuition, nature-based learning, disability inclusion, and the importance of creating environments where autistic individuals can thrive without pressure to conform. Dana shares why traditional approaches are not always enough and how horses offer a unique opportunity for regulation, confidence, connection, and belonging. The conversation explores: * autism and sensory regulation* equine-assisted services* nature-based support for autistic children* maternal intuition and advocacy* disability inclusion and community belonging* farming, purpose, and meaningful work* autism and nervous system regulation* creating supportive environments for neurodivergent individuals Dana also shares how Pony Power supports families across the lifespan, from young children with autism to adults navigating life after age 21, when many formal support systems begin to disappear. This episode is for autism moms, caregivers, educators, therapists, and anyone interested in nature-based approaches to autism support, sensory regulation, disability advocacy, and helping neurodivergent individuals build meaningful lives and connections. In This Episode 00:00 – The mission behind Pony Power Therapies01:00 – Dana’s journey as a social worker and autism mom02:30 – Following maternal intuition instead of rushing to medication04:00 – Why trusting your gut matters in autism parenting05:30 – Equine-assisted services and empowering families06:30 – How autistic children respond to horses and nature08:00 – Sensory regulation through movement and rhythm09:30 – Why horses provide unique nervous system support11:00 – Nature, regulation, and the family system13:00 – Beyond traditional talk therapy approaches14:30 – The role of nature in mental health and autism support16:00 – Nonverbal communication and connection beyond words17:30 – Why leaving the house feels impossible for some families19:00 – Supporting dysregulated autistic children without judgment21:00 – Creating safe spaces for neurodivergent families23:30 – The autism service cliff after age 2125:00 – Farming, employment, and meaningful purpose for autistic adults27:00 – Disability inclusion and reimagining community support Listen to more episodes of the Inchstones Podcast, where Sarah Kernion shares caregiver stories, autism advocacy, profound autism perspectives, neurodivergent parenting, and conversations that challenge us to build more inclusive communities. More about Dr. Dana Spett, DSW  Dr. Dana Spett, DSW, an accomplished professional with a deep commitment to equine-assisted services, nature, and social work is the Founder and Executive Director of Pony Power Therapies, a nonprofit community-based center in New Jersey that connects children and adultswith disabilities or life challenges to the wonders of horses, farming and nature. Dana hasdedicated herself to creating an inclusive and transformative environment guided by nature.Recognizing the power of nature to promote resilience and personal growth, Dana ensures thatPony Power Therapies embodies...
• What If It’s Not Behavior? Understanding Whole Body Apraxia in Autism with Dr. Dana Johnson 09.06.2026 31Min.

  Many parents of non-speaking autistic children carry a quiet certainty: my child understands more than they can show. In this episode of Inchstones, Sarah Kernion sits down with occupational therapist, researcher, and Spellers Method co-creator Dr. Dana Johnson to explore whole body apraxia, motor planning, communication, and why behavior may not tell the whole story. For years, families have been told to trust observable behaviors as the primary measure of understanding. Dr. Johnson challenges that assumption by explaining how motor planning differences can prevent autistic individuals from reliably demonstrating what they know, understand, or intend to communicate. Together, Sarah and Dr. Johnson discuss whole body apraxia, non-speaking autism, presuming competence, sensory regulation, motor coaching, and the ways parents are often dismissed when their observations don’t align with traditional clinical models. The conversation explores: * whole body apraxia and autism* non-speaking autism and communication* motor planning challenges* presuming competence* autism and regulation* maternal intuition and clinical observation* supporting autistic children beyond behavior-based assumptions* co-regulation and caregiver support Dr. Johnson also shares how her work evolved after listening to parents whose experiences challenged what she had been taught professionally. Her message is both practical and hopeful: understanding motor differences can fundamentally change how families, therapists, and educators support autistic children. This episode is for parents, caregivers, educators, therapists, and anyone interested in communication, autism advocacy, profound autism, and understanding what may exist beneath observable behavior. In This Episode 00:00 – Maternal intuition, autism, and the limits of observation02:00 – Why parents are often dismissed by professionals04:15 – The story that led Dr. Johnson to rethink autism therapy05:45 – What whole body apraxia actually means07:15 – Understanding motor planning and communication barriers08:00 – Why behavior does not always reflect understanding09:30 – The backpack example: motor planning in daily life11:00 – Typical childhood behavior versus apraxia12:30 – Why presuming competence matters14:00 – How professionals unintentionally limit autistic children16:00 – Reading ability, communication, and hidden competence17:00 – Regulation, sensory overwhelm, and motor control19:00 – Why parents must regulate themselves first21:00 – The invisible pressure placed on mothers23:00 – Co-regulation and caregiver support25:00 – Building confidence through small wins and inchstones28:00 – Supporting parents, not just children30:00 – The fear every autism parent carries about the future Listen to more episodes of the Inchstones Podcast, where Sarah Kernion explores autism advocacy, caregiver stories, profound autism, communication, neurodivergent parenting, and the small inchstones that shape meaningful lives. About Dr. Dana Johnson:For more than 20 years, Dr. Johnson has worked alongside incredible families who have taught her what true resilience, patience, and hope look like. Through this work, she has learned that two things can be true at once: your child can struggle and make incredible progress at the same time. Recognizing that too many professionals didn't know how to truly help these families, Dr. Johnson created her YouTube channel, “The Autism + Apraxia Doctor,” and expanded her reach across multiple platforms to educate professionals in the autism field. She specializes in helping individuals with complex autism, whole-body apraxia, and other neurodevelopmental disabilities develop intentional motor skills and improve their overall health. Her mission is...
• Autistic Adulthood, Independence, and Living Your Best Life | Zach Ennis’ Story 30.05.2026 19Min.

  What does autistic adulthood actually look like? In this episode of Inchstones, Sarah Kernion sits down with autistic young adult Zach Ennis and his mother, Stacy Ennis, for a powerful conversation about independence, self-advocacy, friendship, community, and building a meaningful life with autism. Too often, conversations about autism stop in childhood. Zach’s story offers something many families are searching for: a glimpse into adulthood, possibility, and the supports that help autistic adults thrive. Zach shares what he enjoys most about his life, from community dinners, theater classes, movies, friendships, and independent living skills to advocating for adults with disabilities. He speaks candidly about communication, relationships, self-confidence, and his hopes for the future. His message is simple but powerful: work hard, be kind, support others, and believe in your potential. Sarah and Stacy also explore the evolution of motherhood, autism advocacy, acceptance, and the unexpected gifts that come from raising and supporting a neurodivergent child into adulthood. Together they discuss communication beyond speech, independence, dignity, self-determination, and why autistic adults deserve opportunities to build full and meaningful lives. This episode explores: * autistic adulthood and independence* autism advocacy and self-advocacy* neurodivergent parenting across the lifespan* community living and social connection* autism and communication differences* supporting autistic adults* friendship, purpose, and belonging* motherhood and lifelong caregiving This conversation is a reminder that autism is not the end of a story. For many families, it is the beginning of a different story filled with growth, connection, community, and possibility. In This Episode 00:00 – Introducing Zach and Stacey Ennis01:15 – Zach shares what he enjoys most about life02:10 – Building independence through community and daily living skills03:00 – Friendship, communication, and social connection03:45 – What Zach wishes people understood about him05:00 – Accomplishments and learning independent living skills06:10 – Feeling seen through autism self-advocacy07:20 – Challenges that people may not notice08:15 – Living your best life and future goals09:00 – Zach’s message about autism and kindness10:15 – What Zach has taught his mother about life12:30 – Friendship, family, and growing into adulthood15:15 – Daily connection between mother and son16:20 – Acceptance, advocacy, and finding joy18:00 – Communication beyond speech and traditional expectations20:00 – Seeing the person beyond the diagnosis Listen to more episodes of the Inchstones Podcast, where Sarah Kernion shares caregiver stories, autism advocacy, neurodivergent parenting, profound autism experiences, and conversations that illuminate the humanity behind every diagnosis.
• What My Son's Autism Diagnosis Taught Me About Myself | Bari Shore's Story 30.05.2026 19Min.

  An autism diagnosis changes more than a child’s future. It changes the people who love that child too. In this episode of Inchstones, Sarah Kernion sits down with Bari Shore for an honest conversation about autism parenting, childhood apraxia, community, motherhood, and the unexpected personal growth that emerges from raising a neurodivergent child. When Bari’s son Dean received his autism and apraxia diagnosis during the pandemic, she found herself searching for answers, support, and connection. Like many autism moms, she experienced relief, grief, uncertainty, and determination all at the same time. But perhaps the biggest surprise was not how much her son would grow. It was how much she would grow too. Together, Sarah and Bari discuss autism parenting, caregiver stories, autism diagnosis journeys, motherhood identity shifts, advocacy, sibling relationships, and the importance of finding people who truly understand your family’s reality. They also explore why support does not always come from large groups, how community can be built one conversation at a time, and what happens when parents learn to celebrate inchstones instead of milestones. This episode explores: * autism parenting after diagnosis* childhood apraxia and autism* caregiver stories and community* motherhood identity and personal growth* sibling relationships and autism* advocacy and communication* autism diagnosis grief and acceptance* parenting autistic children in the present moment For parents navigating autism, apraxia, developmental delays, or the uncertainty that follows diagnosis, this conversation offers honesty, perspective, and hope. In This Episode 00:00 – Finding friendship and community after diagnosis02:00 – The long road to an autism and apraxia diagnosis03:30 – Pandemic parenting and noticing developmental differences04:30 – Relief, grief, and finally having answers05:15 – Becoming “the autism mom” and identity shifts06:00 – Why community became essential06:45 – Cycles of research, burnout, and recovery07:50 – Is autism parenting unfair?08:45 – Celebrating inchstones instead of milestones09:20 – Why the world should adapt to autistic children10:30 – Learning to advocate for yourself as a parent11:45 – Autism parenting and perspective12:30 – Advice for parents receiving a new diagnosis13:45 – Staying present instead of spiraling into the future15:15 – Raising autistic boys and trusting your instincts17:00 – Seeing the child beyond the diagnosis18:20 – Becoming stronger through autism parenting19:45 – Relationships, community, and what matters most Listen to more episodes of the Inchstones Podcast, where Sarah Kernion shares caregiver stories, autism advocacy, neurodivergent parenting, profound autism experiences, and the lessons hidden inside the smallest inchstones.
• Why Autism Moms Never Fully Relax | Kerry Stevens' Story 29.05.2026 26Min.

  Why do so many autism moms feel like they can never fully relax? In this episode of Inchstones, Sarah Kernion sits down with Kerry Stevens for an honest conversation about caregiver burnout, autism motherhood, hypervigilance, and the invisible emotional load that comes with parenting autistic children. Kerry shares the reality of raising her son Connor while balancing work, therapies, school meetings, financial pressure, and the constant responsibility that many special needs caregivers quietly carry every day. Together, Sarah and Kerry explore autism parenting, developmental delays, caregiver exhaustion, IEP advocacy, and the emotional experience of living in a near-constant state of fight-or-flight. Their conversation touches on the grief that can follow an autism diagnosis, the pressure to help your child “catch up,” and the difficult process of accepting a path that looks different than the one you imagined. Kerry speaks candidly about leaving a job that could no longer accommodate the realities of caregiving and the emotional impact of being told her son’s needs were “too much.” This episode explores: * caregiver burnout and autism motherhood* parenting autistic children while working* hypervigilance and nervous system exhaustion* autism diagnosis grief and acceptance* developmental delays and communication challenges* IEP advocacy and trusting parental intuition* balancing therapies, finances, and family life* learning to understand non-speaking communication This episode is for autism moms, caregivers, and families navigating autism parenting, caregiver burnout, developmental delays, and the relentless emotional labor that often comes with raising autistic children. In this episode: 00:00 – The invisible workload of autism motherhood01:30 – Leaving a job because caregiving demands became too great03:00 – Grieving the motherhood journey you imagined05:15 – Living in constant fight-or-flight as an autism parent07:00 – Why autism caregiving never truly shuts off08:30 – Acceptance, therapy, and processing diagnosis grief10:45 – Wanting your child to “catch up” after diagnosis12:00 – Early intervention, ABA, and moving quickly after diagnosis13:30 – Learning your child’s body language and communication patterns15:00 – The daily realities of autism caregiving16:45 – School routines, therapies, and medical support18:00 – Home safety, elopement fears, and constant vigilance19:45 – Reading emotional cues from non-speaking children21:15 – Financial stress and caregiver burden22:45 – IEP advocacy and the power of parental intuition24:30 – Why autism moms deserve more support and understanding Listen to more episodes of the Inchstones Podcast, where Sarah Kernion shares caregiver stories, autism advocacy, profound autism experiences, and the realities of neurodivergent parenting.
• Profound Autism and Letting Go of Expectations with Autism Mom, Alyssa Sieira 29.05.2026 22Min.

  What happens when autism parenting becomes physically, emotionally, and mentally consuming? In this episode of Inchstones, Sarah Kernion sits down with Alyssa Sierra for a raw conversation about profound autism, aggressive behaviors, caregiver exhaustion, sibling dynamics, and the emotional process of letting go of expectations. Alyssa shares the story of her son Gabriel’s autism diagnosis during the pandemic and the moment motherhood shifted from “typical” parenting into a completely different reality. Together, Sarah and Alyssa discuss profound autism, parenting autistic children with severe behaviors, autism family support, caregiver burnout, and the invisible emotional labor autism moms carry every single day. The conversation explores: the grief of realizing your parenting path looks differentnavigating aggressive and self-injurious autism behaviorsraising neurotypical siblings alongside autistic childrenthe emotional complexity of discipline in neurodivergent homeswhy profound autism parenting feels different even within autism communitiesfinding joy and beauty inside developmental differences Sarah and Alyssa also talk openly about survival mode, motherhood identity, sensory overwhelm, and why releasing rigid expectations can create more peace for both parents and children. This episode is for autism moms, caregivers, and families navigating profound autism, developmental delays, severe behaviors, and the emotional complexity of raising neurodivergent children while trying to stay emotionally grounded themselves. Alyssa is a special needs mom to her beautiful 7-year-old son and also a mom to a neurotypical 2-year-old. Navigating both sides of parenting has its unique challenges, but it has also made her stronger, more compassionate, and deeply committed to advocacy. She is passionate about supporting families raising children with disabilities and believes every special needs family deserves the highest level of support from their state and government. Parenting a child with special needs comes with enough challenges; families should not have to fight to have their voices heard. Alyssa believes that every family's story matters and that sharing those stories is one of the most powerful ways to create understanding, change, and a better future for children with disabilities. In this episode: 00:00 – Profound autism and the reality of caregiving02:05 – Receiving an autism diagnosis during the pandemic03:10 – Tunnel vision after diagnosis and needing a plan05:00 – The grief of leaving “typical motherhood” behind06:45 – Explaining autism to friends and family07:30 – Aggressive behaviors and profound autism realities09:20 – Parenting autistic children and neurotypical siblings differently11:00 – The emotional complexity of discipline in autism parenting13:00 – Why autism parenting expands emotional perspective14:15 – Building community and finding supportive people16:00 – What autism moms say privately versus publicly17:10 – Finding joy inside neurodivergent parenting18:00 – Why autistic children experience wonder differently19:10 – Letting go of expectations in autism parenting21:00 – Learning to survive difficult behavioral seasons22:00 – Why positivity matters in caregiver burnout recovery Listen to more episodes of the Inchstones Podcast, an autism podcast sharing caregiver stories, profound autism realities, autism advocacy, and neurodivergent parenting.
• Autism Grief, Expectations, and Letting Go | Shannon Korza 28.05.2026 25Min.

  Autism parenting, caregiver stories, and neurodivergent parenting are at the heart of this episode of Inchstones as Sarah Kernion talks with Shannon Korza of Moms Talk Autism about grief, timelines, motherhood expectations, and parenting autistic children. In this deeply honest episode of Inchstones, Sarah sits down with Shannon Korza for a raw conversation about autism diagnosis grief, the pressure mothers place on themselves after diagnosis, and what it means to let go of the timelines society teaches us to chase. Shannon shares the emotional reality of receiving her daughter Gracie’s autism diagnosis after initially living in denial and fear that she would never be “enough” as a mother. Together, Sarah and Shannon explore autism parenting, caregiver burnout, sibling relationships, sensory differences, IEP goals, autism advocacy, and the deep grief that can surface when life no longer looks the way you imagined it would. The conversation also dives into the hidden emotional labor autism moms carry, the pain of watching autistic children struggle socially, and the shift that happens when parents stop forcing neurotypical expectations onto neurodivergent children. This episode is for autism moms, caregivers, and families navigating autism diagnosis journeys, parenting autistic children, disability advocacy, and the challenge of balancing hope with acceptance. In this episode: 00:00 – Autism parenting and motherhood expectations01:00 – Shannon’s reaction to her daughter’s autism diagnosis02:30 – Grieving the fear of not being “enough” as a parent03:45 – Parenting autistic children versus neurotypical siblings05:00 – Why grief and brokenness carry so much shame for mothers06:30 – Learning to sit with autism grief instead of avoiding it07:00 – The Christmas moment that changed Shannon’s perspective forever09:10 – Why autism parenting can still feel unfair years later10:00 – Autism is not a “superpower” conversation11:15 – Watching autistic children struggle socially13:40 – Sibling relationships and protecting autistic sisters16:00 – The emotional growth autism parenting can create18:00 – Sensory meltdowns and judgment from strangers19:00 – Celebrating tiny wins in autism parenting21:00 – Advice for parents receiving a new autism diagnosis22:00 – Letting go of developmental timelines and comparison24:00 – Creating IEP goals that actually fit your child and family Listen to more episodes of the Moms Talk Autism Podcast and follow Inchstones with Sarah Kernion, an autism podcast sharing caregiver stories, autism advocacy, profound autism, and neurodivergent parenting.
• Autism, Marriage, and Surviving Caregiver Burnout | Tash Dillmon 27.05.2026 27Min.

  Autism parenting, caregiver burnout, and caregiver stories are at the heart of this episode of Inchstones as Sarah Kernion talks with Tash Dillmon of Moms Talk Autism about grief, marriage, mental health, and parenting autistic children after profound loss. In this raw and deeply personal episode of Inchstones, Sarah sits down with Tash Dillmon for an honest conversation about autism parenting, surviving the loss of a child, navigating marriage through trauma, and the emotional realities many special needs caregivers silently carry. Tash shares the story of losing Jack’s twin brother, Jameson, during pregnancy and how grief shaped her experience as an autism mom from the very beginning. Together, Sarah and Tash discuss autism diagnosis journeys, caregiver burnout, maternal mental health, suicidal ideation, neurodivergent parenting, identity loss, and the pressure many mothers feel to keep moving no matter how much they are carrying internally. They also explore the power of partnership in marriage, the emotional depth autistic children often possess, and how parenting autistic children can radically transform the way families experience empathy, love, resilience, and presence. This episode is for autism moms, caregivers, and parents navigating profound grief, emotional exhaustion, disability advocacy, and the complexity of raising neurodivergent children while trying to hold themselves together. In this episode: 00:00 – Autism parenting and finding humor inside hard seasons01:20 – Receiving an autism diagnosis after the loss of a twin03:12 – Grief, therapies, and becoming a full-time autism caregiver05:00 – Losing your identity while parenting autistic children08:30 – Caregiver burnout and hitting emotional rock bottom09:00 – Suicidal ideation and maternal mental health in autism parenting11:45 – Childhood trauma, expectations, and emotional survival14:15 – Marriage, grief, and surviving profound loss together18:00 – How autism parenting transformed their relationship20:00 – Faith, healing, and rebuilding identity through motherhood21:30 – Why autism parenting can feel deeply unfair24:10 – The emotional depth and empathy of autistic children27:00 – How parenting autistic children changes the way you see humanity Listen to more episodes of the Moms Talk Autism Podcast and follow Inchstones with Sarah Kernion, an autism podcast sharing caregiver stories, autism advocacy, profound autism, and neurodivergent parenting.Tash Dillmon lives in the Portland, Oregon area with her husband, her two children, Jack, her neurospicy one, and Sloan, her typical one, and her rambunctious dog, Kiki. She is a solo parent most of the time while her husband is putting out fires in the next city over, #firewifelife! Everyone in the family loves being outside, hiking, kayaking, and enjoying nature. Tash loves to exercise, be in her yard, and volunteer in Children's Ministries at her local church. While she’s not being her kids' Uber driver, she loves a good murder documentary and is happiest watching her kids play sports.
• Autism Parenting, Grief, and Finding Yourself Again with Jean Mayer of Moms Talk Autism 26.05.2026 30Min.

  Autism parenting, caregiver stories, and neurodivergent parenting are at the heart of this episode of Inchstones. Sarah Kernion and Jean Mayer of Moms Talk Autism share a raw conversation about parenting autistic children, grief, identity, disability advocacy, and finding yourself again after diagnosis. In this deeply honest episode of Inchstones, Sarah sits down with Jean Mayer of Moms Talk Autism for a conversation about the hidden grief many autism parents carry, the loss of expectations, and the slow rebuilding that happens after your child’s diagnosis changes the life you imagined. Jean shares what it felt like to move through Rory’s autism diagnosis, give up the career and identity she once expected, and become the manager, advocate, and steady presence her child needed. Together, Sarah and Jean explore caregiver burnout, autism family support, emotional regulation, ableism, disability inclusion, and the reality of living in what Jean calls “the forever trench.” This episode is for every autism mom, special needs caregiver, and parent navigating neurodivergent parenting who has ever felt unseen, overwhelmed, or changed by the journey. It is a conversation about grief, yes, but also clarity, growth, advocacy, sisterhood, and the truth that joy and grief can coexist. In this episode: 00:00 – Why autism mom stories matter01:37 – Jean Mayer shares Rory’s autism diagnosis journey02:32 – The grief and identity shift after an autism diagnosis04:50 – How family systems shape disability expectations07:49 – The emotional energy of autism parenting10:53 – Giving up a career to become your child’s advocate11:28 – What feels unfair about raising an autistic child13:28 – Why autism parenting can feel like “a forever trench”18:05 – Talking honestly about autism grief without shame20:35 – Ableism, motherhood, and learning to see differently24:58 – Why disability belongs in every equity conversation30:11 – What Jean would tell a mom with a newly diagnosed child Listen to more episodes of the Moms Talk Autism Podcast and follow Inchstones with Sarah Kernion, an autism podcast sharing caregiver stories, autism advocacy, profound autism, and neurodivergent parenting. Jean Mayer is a dedicated school board trustee in Pflugerville ISD in Texas, where she serves as Chair of the Government Relations Committee, a role she has held for consecutive years. With a strong commitment to governance integrity, transparency, and student-centered policy, she works to ensure that district decisions reflect both fiscal responsibility and the diverse needs of the community. Jean also serves on the Board of the Autism Society of Texas and actively collaborates with disability advocacy organizations across the state to advance equitable and inclusive policies. In addition to her governance work, Jean is deeply engaged in family and systems-level advocacy. Through her work with Texas Parent to Parent, she provides medical training to first- and second-year medical residents, helping future physicians understand what it means to parent a child with complex needs through a trauma-informed lens. She is also a co-host of the Moms Talk Autism podcast, where she brings together professional insight and lived experience as the parent of a child with profound support needs. Across all of her work, Jean is committed to moving beyond awareness toward true inclusion, belonging, and meaningful systems change for individuals with disabilities and their families.
• Autism Diagnosis and the Pressure to Do Everything Right with Brittney Crabtree 21.05.2026 19Min.

  Autism motherhood often begins with a moment that shatters the future you thought you were building. Sarah Kernion and Brittney Crabtree of Moms Talk Autism reflect on the early shock of diagnosis, the grief of watching expectations collapse, and the pressure many autism moms feel to sprint into every possible intervention. This is Part 1 of 2 with Brittney sharing what it was like to hear the word “autism” nearly 18 years ago, how she immediately moved into research and action mode, and why she now realizes she needed more balance and grace during those early years. The conversation explores the emotional intensity of autism diagnosis, the pressure surrounding early intervention, and the evolving grief that can come as the developmental gap between autistic and neurotypical peers becomes more visible over time. Sarah and Brittney also discuss what happens when autism parenting forces mothers to let go of rigid future planning and instead learn how to live more fully in the present. Through honest reflections on isolation, support systems, burnout, and acceptance, this episode captures the emotional complexity of rebuilding motherhood after diagnosis—one inchstone at a time.
• Caregiver Stories and Autism Advocacy: How Invictus Bakery Is Changing Autism Employment with Molly Sebastian 14.05.2026 31Min.

  caregiver stories, autism advocacy, inchstones, autism parenting, nonspeaking autism, inclusive employment autism, autism adulthood, disability employment, social enterprise autism, autism community support, autism motherhood, spelling to communicate, neurodiversity, meaningful work disabilities, autism employment opportunities Find out more about Invictus Bakery here: https://invictusbakery.org/
• Inclusive Employment with Autism Mom Kelly Castro with Carson’s Cookie Dough 12.05.2026 25Min.

  Autism motherhood often carries an unspoken fear about the future: what happens when childhood services end and adulthood begins? In this conversation, Sarah Kernion speaks with Kelly Castro about how that fear became the foundation for something larger than survival—a social enterprise creating meaningful employment and community for young adults with disabilities. Kelly shares her journey as a mother, caregiver, and entrepreneur after realizing her son Carson deserved more than limited options and lowered expectations. What began as worry evolved into Carson’s Cookie Dough, a business rooted in inclusion, dignity, and purpose. This episode centers caregiver stories and the reality many autism parenting families quietly hold: adulthood can feel uncertain, especially for individuals with higher support needs and nonspeaking autism. Through inchstones—small but meaningful steps—Kelly built opportunities not only for her son, but for an entire community of young adults too often excluded from traditional employment spaces. The conversation explores autism motherhood, caregiving, entrepreneurship, and the power of community support in creating sustainable paths toward belonging and independence. At its core, this is a story about refusing to let fear define the future.Kelly Castro is a mom and the founder of Carson’s Cookie Dough and Just a Taste of NJ, mission-driven businesses challenging how the workforce includes individuals with disabilities. Inspired by her 9-year-old son Carson, who is on the autism spectrum, and the reality that nearly 80% of autistic adults are unemployed, she set out to build a business where intellectually and developmentally disabled individuals are essential, not an afterthought. What started as a small bakery has grown into a multi-channel operation. Kelly is now building  scalable model to bridge the gap between education and employment, proving inclusion is not charity, but smart business.
• Autism Caregiving and Community with We Are Brave's Jessica Patay 07.05.2026 29Min.

  Autism parenting often places caregivers in prolonged states of stress, isolation, and emotional exhaustion. In this conversation, Sarah Kernion speaks with Jessica Patay, founder of We Are Brave Together, about the power of community support, emotional resilience, and advocacy for families raising children with disabilities and complex needs. Jessica shares how parenting her son Ryan, who has Prader-Willi syndrome, transformed her understanding of caregiving and led her to create spaces where mothers and caregivers could feel seen, supported, and connected. The discussion explores the emotional realities of autism parenting, including the importance of vulnerability, shared stories, and acknowledging the invisible labor caregivers carry. The episode also highlights Jessica’s expanding work through retreats, support networks, and her books Becoming Brave Together and the newly released Suddenly Brave Together. While Becoming Brave Together focused on heroic caregiving stories from mothers navigating disability and rare conditions, Suddenly Brave Together expands the conversation through deeply personal letters and reflections that offer validation, hope, and solidarity to caregivers in the thick of altered parenting journeys. At its core, this conversation reframes autism parenting and caregiving as experiences that require more than endurance—they require sustainable community, emotional honesty, and systems designed to support the entire family. Find all of Jessica's work at WE ARE BRAVE TOGETHER.
• From Dysregulation to Connection: Autism Parenting and Emotional Support with Laurie Dove 05.05.2026 27Min.

  Autism parenting often brings families face-to-face with emotional intensity—both in their children and within themselves. In this conversation, Sarah Kernion speaks with Laurie Dove about regulation, resilience, and the lived reality of raising children with autism, including those with nonspeaking autism. Laurie shares her personal journey navigating early concerns, intervention, and the evolving emotional landscape of motherhood. At the center of the discussion is a core principle: regulation is not optional—it is biological. Both parent and child operate within nervous systems that respond to stress, environment, and connection. The conversation explores practical strategies for managing dysregulation, including naming emotions, building awareness, and creating space for calm responses. It also addresses the often unspoken experiences of resentment, overwhelm, and isolation that can accompany autism parenting—and the importance of community in mitigating those pressures. Through caregiver stories and grounded insight, this episode reframes regulation as a foundational skill in autism parenting. Not perfection, but awareness and practice—what Inchstones calls small, consistent shifts—create lasting change. Find Laurie, the Queen of Autism Mom Regulation, on Instagram:  @everyday_autism_essentials_
• Beyond Stereotypes: Autism Parenting, Communication, and Community with Chloe Barnes 01.05.2026 41Min.

  Autism parenting often begins with uncertainty but evolves through relationship, exposure, and lived experience. In this conversation, Sarah Kernion speaks with Chloe Barnes about her path from caregiver to advocate and how that journey reshaped her understanding of autism, including nonspeaking autism. Chloe’s work emphasizes the difference between transactional support and relational connection. Through direct caregiving experience, she highlights how communication extends beyond speech and how meaningful engagement requires presence, curiosity, and a willingness to challenge assumptions. The conversation explores how societal perceptions of autism are often shaped by distance rather than understanding. For families engaged in autism parenting, especially those supporting nonspeaking individuals, this gap can lead to isolation and misinterpretation. By centering caregiver stories and real-world interaction, this episode reframes autism advocacy as something built through relationship—not just policy or language. It calls for deeper community engagement, more exposure, and a commitment to seeing individuals with autism as whole people within their environments. Chloe Barnes is the host of the Aletheia Project, a podcast designed to educate on the realities of autism, platform parent advocates, and create a more understanding and inclusive world for children and adults living with profound autism. Chloe brings a unique perspective shaped by her experience working as a caregiver. Through thoughtful conversation, she strives to create space for understanding, connection, and meaningful change. The Aletheia Project can be found: Instagram: @the_aletheiaproject  Youtube: https://youtube.com/@the_aletheia_project?si=2rxrzPptF4ppkcK7
• Public Policy & Autism Parenting: The Truth About Support Needs with NCSA Fellow, Cristina Gaudio 22.04.2026 39Min.

  Autism parenting often reveals a gap between public narratives and lived reality—especially for families supporting children with higher needs, including nonspeaking autism. In this conversation, Sarah Kernion speaks with Cristina Gaudio, a legal policy and advocacy fellow, about the complexities of autism spectrum disorder and the urgent need for more nuanced public discourse. Cristina explores how current conversations around neurodiversity can sometimes obscure the realities of individuals who require significant, lifelong support. The discussion highlights the importance of stratifying support needs within autism, not to divide, but to ensure that policy solutions match real-world requirements. They also examine how media narratives and social discourse influence policy decisions, often simplifying a spectrum that is inherently complex. For families engaged in autism parenting, these simplifications can lead to gaps in services, misaligned legislation, and a lack of meaningful support. This episode calls for a more honest conversation—one that includes caregivers, acknowledges the full range of autism experiences, and prioritizes targeted, effective policy solutions. Cristina Gaudio is the appointed Legal Policy and Advocacy Fellow at the National Council on Severe Autism (NCSA). She is a JD/MPP candidate at Vanderbilt University and a 2023 graduate of the University of Chicago, where she earned a B.S. in Mathematics and a B.A. in Economics. As an autism sibling, Cristina is deeply committed to advancing evidence-based policies that improve the lives of individuals on the severe end of the autism spectrum. Her policy interests focus on Medicaid reform, housing access, and research aimed at supporting meaningful services and long-term outcomes for profoundly affected autistic individuals. Cristina is passionate about fostering truthful and compassionate autism discourse that includes all members of the spectrum. In addition to her studies, she serves her country as a U.S. Air Force Reserve Officer. Outside of her academic, military, and advocacy commitments, Cristina enjoys baking cookies, hiking, and traveling with her brother, who continues to inspire her dedication to autism advocacy. Reach out via email at cristina@ncautism.net.
• From Autism Parenting to Advocacy: Honey Rinnicella on MAPS and A Place To Breathe 14.04.2026 36Min.

  Autism parenting often leads families into advocacy, especially when navigating complex healthcare and support systems. In this episode of the Inchstones Podcast, Sarah Kernion speaks with Honey Rinnicella about autism, autism parenting, and her work with MAPS (Medical Academy of Pediatric Special Needs). They discuss caregiver support, root cause medicine, and the need for stronger community systems for families raising children with autism, including those with nonspeaking autism. Honey also shares her vision for A Place to Breathe, a space designed to support healing, connection, and long-term sustainability for autism families. This conversation explores how personal experience can drive meaningful change in autism advocacy and community support. Honey Rinicella is the Executive Director of the Medical Academy of Pediatrics and Special Needs (MAPS), a national nonprofit advancing physician education and clinical capacity to care for individuals with autism and complex medical needs across the lifespan. Under her leadership, MAPS operates the only formal physician fellowship in the United States dedicated to comprehensive, evidence-informed medical care for this underserved population. Previously, Rinicella served as Director of Education for the National Autism Association, where she led national conferences and professional education initiatives, and held leadership roles with The Autism Community in Action (TACA), developing large-scale caregiver and professional training programs. She is also the parent of 25-year-old twins with autism, grounding her work in lived experience. Her focus is on strengthening medical standards of care, improving access to medically necessary treatment, and addressing systemic gaps—particularly for non-speaking individuals and adults transitioning out of pediatric systems. MAPS: https://www.medmaps.org/about-us/