EULAR PARE

Afleveringen

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  Socio-Economic Challenges of Living with RMDs 17.06.2026 37min

  Living with an RMD can impact not only your health, but also your career, finances, and future opportunities. 💚 In this episode, we explore the real-life challenges of navigating work while living with an RMD. From workplace accommodations and employment rights to the broader socio-economic impact of chronic disease, our guests share their insights and experiences. Hosted by Tanita-Christina Wilhelmer, featuring Marko Mladenović, a PARE volunteer, human rights advocate, and lupus patient repr...
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  News from Africa 03.03.2026 22min

  Join us on the EULAR PARE Podcast as host Jeanette Andersen speaks with Franklin Hiagbe, a patient advocate working to improve autoimmune disease care across Ghana and Africa, and Maranda van Dam, Founder of ASASA and a leader in patient-led advocacy in South Africa. In this episode, they share clear and inspiring insights on patient advocacy, innovation, and inclusion across the African rheumatology community.
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  World Arthritis Day 2025 - Achieve your Dreams 09.10.2025 40min

  In this special EULAR Young PARE & EMEUNET Joint Podcast episode for World Arthritis Day 2025, themed “Achieve Your Dreams!”, we explore the hopes and aspirations of people living with rheumatic and musculoskeletal diseases (RMDs) and the young rheumatologists who support them. Hosted by Tanita-Christina Wilhelmer, featuring Marko Mladenovic and Marcos Séneca García Rodríguez from Young PARE and Pierre-Antoine Juge and Krystel Aouad from EMEUNET.
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  Working with an RMD: Real Stories, Real Strategies. 08.07.2025 44min

  Join our host, Tanita-Christina Wilhelmer, as she speaks with Sarah Copsey, Sarah Bennett, Sina Budeja and Giovanni Mascarino. Four inspiring guests who open up about their personal journeys, share practical tips, and offer powerful advice for navigating work life while living with a rheumatic and musculoskeletal disease (RMD).
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  Young PARE Podcast - Studying with an RMD: Real Stories, Real Strategies 01.07.2025 17min

  Join us on the Young PARE Podcast as our host, Tanita-Christina Wilhelmer, delves into a captivating discussion with guest Sophia Marantidou. In this inspiring episode of the Young PARE podcast, we dive into the realities of managing a career while living with a rheumatic and musculoskeletal disease (RMD). Our guests shares her personal stories, practical tips, and powerful advice for anyone navigating similar challenges.
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  Living with an RMD in South America - insights and challenges 30.09.2024 23min

  Join us on the EULAR PARE Podcast as our host, Jeanette Andersen, speaks with Gonzalo Tobar from Chile, a representative of ASOPAN and Lupus Chile. In this episode, Gonzalo sheds light on the challenges faced by people living with RMDs and patient organisations in South America to the EULAR PARE audience. There is much in common and plenty to learn from one another!
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  Knowledge Transfer Programme 28.05.2024 24min

  Join us on the EULAR PARE Podcast, where we facilitate the exchange of insights and expertise among the PARE Community. In this episode, we discuss the Knowledge Transfer Programme (KTP). Our host, Nadia Malliou, sits down with Ingrid Põldemaa from Estonia to explore the impactful projects her organisation has successfully implemented with KTP support. Discover how your organisation can benefit from this valuable programme and unlock new opportunities for growth and collaboration.
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  Young PARE Podcast - Travelling and living abroad with RMDs 12.02.2024 22min

  Join us on the Young PARE Podcast as our host, Tanita-Christina Wilhelmer, delves into a captivating discussion with guest Caroline Kirsten. Together, they explore the distinctive challenges encountered by those living with Rheumatic and Musculoskeletal diseases (RMDs) when travelling and living abroad. Tune in for invaluable insights and expert tips on navigating journeys abroad while living with an RMD.
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  Young PARE Podcast - World Arthritis Day 2023: 'Living with an RMD at all stages of life' 12.10.2023 37min

  In celebration of World Arthritis Day 2023, Young PARE is hosting a podcast on the topic "Living with an RMD at all stages of life". Our host, Tanita-Christina Wilhelmer, asks participants about their personal experiences living with an RMD and how their diagnosis has affected their lives. Listen to their inspirational stories and helpful tips on coping with a new diagnosis.
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  Young PARE Podcast - Building a professional career while having an RMD 31.08.2023 31min

  In the third Young PARE podcast episode, Tanita-Christina Wilhelmer discusses with Sladjana Rumpl Tunjic different paths to fulfilling professional careers. How do you manage your RMD when working full-time? Why is it sometimes not possible to work 100%? How can you find a work-life balance? And why is it important to ask for help?
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  Young PARE Podcast - Body image and RMDs 13.06.2023 29min

  In the second Young PARE podcast, Caroline Kirsten and Ilaria Bini discuss with host Tanita-Christina Wilhelmer the body image while coping with RMDs, and how it influences various relationships, friendships and intimacy. How are tattoos connected with RMDs? Find out in this episode!
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  Meet the EULAR PARE Outstanding Award Winner 2023 Dieter Wiek from Germany 09.05.2023 22min

  This episode features the EULAR PARE Outstanding Achievement Award winner 2023. EULAR PARE meets with Dieter Wiek from Germany, who is the first person to be awarded with this important recognition for his outstanding work for EULAR and commitment as a volunteer for more than a decade. An inspiration to all volunteers.
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  Young PARE Podcast - Growing up with an RMD 09.05.2023 34min

  This episode features a brand new Young PARE Podcast series focusing on young people living with RMDs. Sophia Marantidou from Greece and Giovanni Mascarino from Italy, who both received the RMD diagnosis in their childhood, discuss with our host Tanita-Christina Wilhelmer growing up with an RMD.
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  Meet a PARE Best Practice winner - Axial Spondyloarthritis Association of South Africa 04.04.2023 16min

  This episode features a new series within the EULAR PARE Podcast where EULAR PARE meets with representatives of RMD patient organisations outside of Europe. We start with South Africa and the African continent in general, where we will hear from Maranda van Dam, Chairperson of the Axial Spondyloarthritis Association of South Africa, what challenges people with RMDs are facing and what patient organisations are doing to improve their quality of life. Maranda`s initiative won the PARE Best Prac...
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  How to create a programme for patient education after diagnosis 26.09.2022 16min

  Lene Mandrup Thomsen (Danish Rheumatism Association) and Jeanette Andersen (Lupus Denmark) discuss how their organisations have created a programme for patient education after diagnosis called “Know Your Lupus” and how this has helped patients manage their disease.
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  Celebrating EULAR's 75th Anniversary! 27.05.2022 33min

  EULAR Past-President, Iain McInnes, and EULAR PARE Vice President, Elsa Mateus, discuss EULAR's biggest achievements over the years, and what we can expect for the future of rheumatology and the organisation, in this very special episode celebrating a momentous occasion - EULAR's 75th Anniversary!
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  Patient representatives at the EULAR Congress: experiences and expectations 27.05.2022 8min

  Simon Stones (patient advocate from the UK) and Alice Grosjean (Swiss League Against Rheumatism) discuss the meaning and importance of the EULAR Congress to the PARE member organisations but also to the patient representatives themselves.
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  Why and how to implement peer-mentoring programmes 17.05.2022 12min

  Nele Caeyers and Diederik De Cock from Belgium's patient organisation ReumaNet talk about peer mentoring: what is it, how ReumaNet has implemented peer mentoring programmes in their country, as well as some lessons learned from this experience.
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  Meet our collaborators - EURORDIS 26.04.2022 21min

  This episode initiates a new series within the EULAR PARE Podcast where we aim to get to know the European organisations that collaborate with EULAR PARE a little better. Simona Bellagambi and Ilaria Galetti from EURORDIS share its history, connection to EULAR PARE and the excellent work that they do for people with rare diseases in Europe, including people with RMDs.
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  Meet a PARE Best Practice Fair winner - NRAS 14.02.2022 19min

  Ailsa Bosworth from the UK’s National Rheumatoid Arthritis Society talks about SMILE-RA, a project on self-management e-learning for people with RA, which was also one of the winners of the Best Practice Fair at the EULAR PARE Conference.