Dementia Untangled

Episoder

• 
  Season 13 Revisited (with Amber Ayers) 13.07.2026 28min

  In this special season finale, we take a step back to reflect on the incredible journey of Season 13. Join us for an intimate behind-the-scenes conversation with Amber Ayers, the editor and producer who has been instrumental in bringing these powerful stories to life. Season 13 has taken us to unexpected places and challenged us to think differently about cognitive health. Now, Amber pulls back the curtain to share her unique perspective on the season's most impactful moments, the stories that stayed with her long after recording, and the technical and creative decisions that shaped each episode. This isn't just a recap—it's a deeper dive into the themes, connections, and revelations that emerged across the season. 
• 
  The Brain’s Plastic Problem (with Dr. Matt Campen & Dr. Eliane El Hayek) 01.07.2026 36min

  In this eye-opening episode, we dive into one of the most alarming environmental health discoveries of our time: microplastics are infiltrating our brains—and the implications for cognitive health may be profound. Our conversation with Dr. Matt Campen, a distinguished professor and toxicologist, and Dr. Eliane El Hayek, an assistant professor at the forefront of microplastic research helps us unravel the science behind how these tiny plastic particles enter our bodies, cross the blood-brain barrier, and potentially contribute to neurological decline. From the water we drink to the air we breathe, microplastics are everywhere—and emerging research suggests they may be accumulating in brain tissue at concerning levels. Our guests explain the latest findings, the potential mechanisms of harm, and what this means for dementia risk and brain health across the lifespan. 
• 
  Dementia Without Borders (with Dr. Santino Severoni) 17.06.2026 41min

  We sit down with Dr. Santino Severoni, the World Health Organization's Head of Health and Migration, to explore an often-overlooked intersection of global health crises: dementia care among refugee populations. Dr. Severoni brings his extensive expertise to illuminate the unique challenges faced by refugees and migrants living with dementia—from language barriers and cultural stigma to the trauma of displacement compounding cognitive decline. We discuss how forced migration disrupts traditional family care structures, the difficulties of diagnosis in transient populations, and the critical gaps in healthcare systems that leave vulnerable elderly refugees and migrants without adequate support. This conversation challenges us to think beyond borders about dignity, care, and our collective responsibility to the world's most vulnerable populations.  
• 
  From Interviewing World Leaders to Leading Caregivers (with Deborah Kan) 03.06.2026 37min

  In this deeply personal and inspiring episode, Deborah Kan, an award-winning journalist and founder of Being Patient, shares how her caregiving journey transformed her from a seasoned journalist covering global events to a trusted voice in the dementia community. She opens up about the challenges of balancing her career with the demands of caregiving, the moments that challenged her, and the insights that ultimately led her to create resources that thousands of families now depend on. Deborah brings her storytelling expertise and investigative instincts to a conversation that explores the gaps in dementia support, the isolation caregivers face, and why she decided to use her platform and skills to build something bigger than herself. From the newsrooms of Asia to the quiet moments of caregiving at home, this is a story about finding purpose in unexpected places and turning personal struggle into collective strength. As a mom of three and an avid runner, Deborah also discusses how she maintains her own well-being while supporting others, the lessons journalism taught her about advocacy, and what it really takes to create meaningful change in the dementia space. 
• 
  Senior Moments or Something More (with Dr. Michelle McDonnell) 20.05.2026 35min

  We've all experienced those frustrating moments—forgetting where we put our keys, blanking on a name, or walking into a room and wondering why we're there. But when do these everyday memory slips cross the line from normal aging into something more serious? In this episode, we're joined by Dr. Michelle McDonnell, a clinical neuropsychologist who specializes in cognitive assessment and dementia diagnosis. She helps us understand the crucial differences between the natural cognitive changes that come with aging and the warning signs of dementia that should never be ignored. With compassion and clarity, Dr. McDonnell walks us through what happens to our brains as we age, explaining why some forgetfulness is completely normal while other patterns demand attention. She shares real-world examples that illustrate the distinction, discusses the role of neuropsychological testing, and offers guidance on when to seek professional evaluation.
• 
  Intervening in Alzheimer's Before Symptoms Strike (with Dr. Mike Malek-Ahmadi) 06.05.2026 30min

  What if we could stop Alzheimer's disease before the first symptom ever appears? In this groundbreaking episode, we sit down with Dr. Mike Malek-Ahmadi, a researcher, to explore the cutting-edge frontier of pre-symptomatic Alzheimer's intervention. Dr. Malek-Ahmadi takes us deep into the science of early detection, explaining how researchers are now identifying biomarkers and brain changes decades before memory loss begins. We discuss the revolutionary clinical trials targeting at-risk individuals, the ethical complexities of treating people who feel perfectly healthy, and the potential to fundamentally transform how we approach neurodegenerative disease. From amyloid plaques to tau proteins, from genetic risk factors to lifestyle modifications, this conversation challenges everything we thought we knew about Alzheimer's treatment. Dr. Malek-Ahmadi shares insights from the latest research, the promise of disease-modifying therapies, and what this paradigm shift means for patients, families, and the future of brain health. 
• 
  Reframing Caregiver Guilt (with Susanne White) 22.04.2026 32min

  We asked Susanne White, founder of Caregiver Warrior, to help us explore one of the most challenging emotional aspects of caregiving: guilt. The weight of caregiving can take its toll, often leading to self-doubt, overwhelming feelings during the journey, and lingering questions long after. Susanne helps us understand the crucial distinction between guilt and shame, and why recognizing this difference matters for your emotional well-being. She emphasizes the importance of giving yourself grace and love as you navigate the complexities of caring for someone with dementia — a role that no one truly signs up for. Throughout our conversation, Susanne shares practical strategies for reframing difficult feelings without compounding them, helping caregivers manage expectations and find compassion for themselves. We discuss why self-compassion is essential for caregiver sustainability and explore techniques for managing the unpredictable nature of the caregiving journey. Susanne offers wisdom on honoring your humanity while caring for others, validating the caregiver experience, and finding hope for emotional healing. 
• 
  Lessons in Courageous Caregiving (with Debbie Gross) 08.04.2026 27min

  What happens when you're simultaneously caring for children, aging parents, and managing a career — all while trying to maintain your own well-being? In this powerful conversation, we sit down with Debbie Gross — daughter, mother, caregiver, dementia advocate, and small business owner — to explore the realities of what she calls "Panini Caregiving." Moving beyond the traditional "Sandwich Generation" metaphor, Debbie shares her personal journey and hard-won wisdom about the unique pressures of caring for multiple generations at once. We dive deep into the emotional, physical, and financial challenges that arise when your responsibilities span from school pickups to medical appointments, from business decisions to bedtime routines, and from career ambitions to caregiving duties. 
• 
  When the Helper Needs Help (with Dr. Wolfgang Spangenberger) 25.03.2026 34min

  This insightful conversation with Dr. Wolfgang Spangenberger, chief of surgery, mediator and author, explores the often-overlooked reality of caregiver burnout and the critical importance of self-care in the caregiving journey. Caregiving is one of life's most demanding roles — both mentally and physically exhausting, yet deeply rooted in compassion and the willingness to care for those we love. For many, this role arrives unexpectedly, particularly when navigating the complex and progressive nature of a loved one's dementia. The challenges can feel overwhelming as caregivers balance their own needs with the evolving demands of their care recipient. Dr. Spangenberger shares his expertise on recognizing the signs of caregiver burnout before it becomes overwhelming, managing expectations in the unpredictable journey of dementia care, and giving yourself grace when things don't go as planned. We discuss the power of self-compassion as a tool for sustainable caregiving and explore practical strategies for caring for yourself while caring for others. 
• 
  Setting the Record Straight on Confabulation (with Helle Brand) 11.03.2026 30min

  Helle Brand, a physician assistant specializing in dementia care, helps us explore the often-misunderstood phenomenon of confabulation in dementia patients. We discuss what confabulation actually is and why it's fundamentally different from intentional lying. We explore the neurological basis behind why dementia patients create false memories to fill gaps in their recollection, examining common triggers and how the brain attempts to make sense of fragmented memories through fabricated narratives that feel completely real to the person experiencing them. We learn the crucial differences between confabulation and delusional thinking, and why accurate identification matters for providing appropriate care. One of the most powerful aspects of our conversation addresses the caregiver's dilemma — the emotional strain of hearing incorrect stories and why the overwhelming urge to correct these narratives can actually be counterproductive. 
• 
  Season 12 Revisited (with Amber Ayers) 03.12.2025 20min

  In this special Season 12 Revisited episode, we sit down with our editor and producer, Amber Ayers, to reflect on the powerful conversations and insights shared throughout the season. Together, we explore the themes, stories, and expertise our guests brought to the chat—and how these experiences have shaped our own perspectives both professionally and personally.From innovative updates for prevention and care to deeply human stories of resilience, we untangle what resonated most and how we continue to carry these lessons forward in our work and lives. Join us for a behind-the-scenes conversation full of heartfelt moments, laughter, and renewed appreciation for the journey through dementia education and support.
• 
  Exploring the Dementia Data Hub (with Dr. Melinda Power & Dr. David Rein) 19.11.2025 29min

  In this episode, we dive deep into how comprehensive datacollection is revolutionizing our approach to dementia as a critical public health issue. Our guests, Dr. Melinda Power and Dr. David Rein, help us explore the groundbreaking Dementia Data Hub and its transformative impact on public health understanding. They walk us through this innovative free website that democratizes access to vital dementia information through interactive maps that visualize dementia prevalence across different regions, dynamic dashboardsdisplaying real-time statistics and trends, and research reports offering high-level findings and actionable insights.Discover how knowledge of diagnosed dementia cases inspecific areas is creating unprecedented opportunities for strategic resource allocation, targeted direct funding, and identifying crucial research opportunities.
• 
  Unique Aspects of Veterans and Dementia (with Dr. Amruta Vadnerkar & Mary De Guzman) 05.11.2025 34min

  We explore the complex intersection of military service and dementia care with Dr. Amruta Vadnerkar, geriatrician and medical director, and Mary De Guzman, program coordinator for the COACH Program at the Phoenix Veterans Affairs Healthcare Center. Our expert guests untangle the unique exposure risks that veterans face, from combat-related traumatic brain injuries to environmental hazards encountered during service. We delve into military-specific risk factors that may accelerate disease progression and examine how these factors create distinct challenges in dementia care for our veteran population.We untangle critical support systems for caregiver wellness, recognizing the unique stressors faced by families caring for veterans with dementia. Our guests provide practical guidance on long-term care planning, including navigating VA benefits, accessing specialized programs, and effectively managing care transitions.
• 
  Swinging for the Fences - The Future of Alzheimer's Prevention (with Dr. Robert Alexander) 22.10.2025 31min

  An enlightening conversation with Dr. Robert Alexander, Chief Scientific Officer of the Alzheimer's Prevention Initiative at Banner Alzheimer's Institute, explores the cutting-edge world of Alzheimer's research and prevention. He takes us deep into the science behind one of medicine's most challenging frontiers. We dive into groundbreaking research studying autosomal dominant Alzheimer's disease. Dr. Alexander explains how scientists are unlocking the mysteries of amyloid processing in the brain by studying families genetically destined to develop the disease. Discover how this unique research approach is providing unprecedented insights into the earliest stages of Alzheimer's development and allows them to explore the promising therapeutic developments emerging from collaborative research efforts worldwide, including innovative drugs that target the disease at its source. 
• 
  Navigating Transitional Stress (with Laura Vaillancourt) 08.10.2025 34min

  Laura Vaillancourt, a licensed mental health counselor and geriatric mental health specialist, helps us explore the complex world of transitional stress for individuals living with dementia and their caregivers. She shares her expertise on how our perception shapes our reality, emphasizing that "everything depends on how we make sense of what is happening to us." She guides us through practical strategies for reframing challenging situations, helping both caregivers and their loved ones find new perspectives during difficult transitions. She provides actionable insights on how caregivers can use their presence, tone, and physical demeanor to create calmer, more positive interactions.
• 
  Firsthand Insight into Mild Cognitive Impairment (with Bob Ehlers) 24.09.2025 32min

  In this powerful and deeply personal episode, we sit down with Bob Ehlers, a courageous advocate from the neurocognitive disability community, who shares his transformative journey following his diagnosis of Mild Cognitive Impairment (MCI). Rather than retreating into silence, Bob has chosen to amplify his voice and inspire others facing similar challenges. Bob opens up about the pivotal moments that led him to seek medical help, offering honest insights into the early signs and symptoms that prompted his decision to get evaluated. He walks us through the emotional complexity of receiving his MCI diagnosis — from initial fears and uncertainty to finding unexpected empowerment in having answers. 
• 
  The Accidental Caregiver (with Dr. Stuart Ghertner) 10.09.2025 36min

  Dr. Stuart Ghertner, a retired psychologist, shares his story about how his professional expertise took on profound personal meaning when he became the primary caregiver for his beloved wife, Pam. He explores his unique dual perspective—both as a trained mental health professional and as a devoted husband navigating the complex emotional landscape of caregiving. Stuart discusses how his clinical training helped him recognize subtle changes in Pam's behavior and cognitive function, ultimately leading him to seek a diagnosis. He candidly explores his journey of building a comprehensive support network and identifying the right healthcare partners, accessing community resources, and creating meaningful daily experiences that honored Pam's dignity and maximized their quality time together. 
• 
  Untangling Frontotemporal Dementia (with Susan Dickinson) 27.08.2025 31min

  Our conversation with Susan Dickinson, Chief Executive Officer of the Association for Frontotemporal Degeneration (AFTD), explores frontotemporal dementia (FTD), a lesser known but devastating form of dementia that primarily affects behavior and executive function rather than memory. Susan helps us understand the distinctive signs of FTD, including personality changes, social inappropriateness, and diminished decision-making abilities that often appear in patients’ 40s and 50s — decades earlier than typical Alzheimer's onset. She clearly explains the critical differences between FTD and Alzheimer's disease, emphasizing why an accurate diagnosis is essential for proper treatment, family support, and planning. 
• 
  The Spirit and Science of Alzheimer’s (with Rev. Dr. Jade Angelica) 13.08.2025 35min

  We sit down with Rev. Dr. Jade Angelica, a compassionate minister, spiritual director, and pioneering dementia educator who brings a unique perspective to understanding Alzheimer's disease. Dr. Angelica challenges conventional narratives about dementia by exploring the unexpected gifts that can emerge from the caregiving journey. Our conversation delves into the profound concept of "the grace of diminishments" and examines the critical distinction between cure and healing. Dr. Angelica shares insights from her extensive work with the dementia community, highlighting the remarkable strength and resilience she's witnessed among both caregivers and those living with cognitive decline. 
• 
  Strength in Storytelling (with Marcy Silva) 30.07.2025 33min

  There's nothing more powerful than storytelling, so we asked Marcy Silva, her mother’s daughter and a caregiver, to share her experience of caring for her mother who lives with dementia. Marcy opens up about the unique challenges of caregiving in a rural tribal community, including how she incorporates cultural practices and beliefs into her routine. As a natural storyteller, Marcy takes us through her emotional journey from first noticing changes in her mother's behavior to becoming her primary advocate. She discusses how cultural traditions have supported her experience, while offering practical advice on balancing family responsibilities with caregiving duties, finding support networks, and advocating effectively within healthcare systems. Her resilience and wisdom offer hope and guidance to anyone who is walking a similar path.