My Lupus Living Room

Odcinki

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  Riding Through The Lupus Storm 01.05.2026 27min

  Courtney joins the podcast to talk about her journey with lupus and share the details of an upcoming Motorcycle Ride she is helping to organize to raise money and awareness. She is joined by Michael from Punishers LEMC which is the club hosting the event! Michael shares a little bit of the history of Punishers LEMC as well as why its important to give back to the community.
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  Biologic Treatments For Lupus Patients 01.04.2026 32min

  Dr Vicki Nahra from University Hospitals in Cleveland joins Suzanne to discuss biologic therapies available for lupus patients! Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! [email protected]⁠Upcoming Events: https://linktr.ee/lupusgreateroh🎗️ Lupus Foundation of America, Greater Ohio Chapter (LFA-GOC)We’re a 501(c)(3) nonprofit organization improving the lives of those affected by lupus through research, education, support, and advocacy.Serving lupus warriors across Ohio, we provide programs, patient education, support groups, and events like Walk to End Lupus Now.
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  Lupus Mail Lady Uses Influence To Deliver Awareness and Hope! 11.03.2026 24min

  Rachelle Roy shares her journey overcoming discoid lupus, taking pride in her work and serving her community. She is well traveled, hopelessly optimistic, and a beacon of light in the community she serves!🎗️ Lupus Foundation of America, Greater Ohio Chapter (LFA-GOC)We’re a 501(c)(3) nonprofit organization improving the lives of those affected by lupus through research, education, support, and advocacy. Serving lupus warriors across Ohio, we provide programs, patient education, support groups, and events like Walk to End Lupus Now.💜 Get Involved:🌐 Website: https://www.lupusgreaterohio.org💰 Donate: https://www.lupusgreaterohio.org/donate🚶‍♀️ Join a Walk: https://www.lupusgreaterohio.org/walk🛍️ Shop RaiseRight: https://www.lupusgreaterohio.org/raiseright🙌 Volunteer: https://www.lupusgreaterohio.org/get-involvedFollow Us:Facebook: https://facebook.com/LupusgreaterOHInstagram: https://instagram.com/lupusgreaterOHTwitter/X: https://twitter.com/lupusgreaterohTikTok: https://tiktok.com/@lupusgreateroh
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  Chef Finds Her Recipe For Thriving With Lupus 26.09.2025 49min

  Latasha has been living with lupus for the last 25 years. As a Chef by trade often working 10-12 hours per day, she has her good days and bad. Latasha shares how her unbreakable spirit and can do mindset has allowed her weather every storm and persevere!Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! [email protected]
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  Seeking Community After Lupus Diagnosis 30.08.2025 43min

  Jen Oster started getting a strange rash on her legs while recovering from COVID. After multiple doctors appointments, prescribed rounds of medication and testing she was diagnosed with lupus. Jen sits down with Suzanne to share what she went through along the way and ultimately how it changed her life forever. Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! [email protected] With Jen In Cleveland on September 6thVisit Our Website
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  Tackling Lupus In Recovery 28.08.2025 43min

  Valerie is a newly diagnosed lupus patient just beginning her journey. She shares her struggle to accept and understand her diagnosis while also in recovery from alcohol. Her story is a testament to strength, resilience, and perseverance. Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! [email protected]
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  A Family Overcoming Lupus Together! 13.08.2025 34min

  Melissa shares her incredible journey with lupus and how she, and her family, have managed to find strength together to overcome many hurdles along the way! Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! [email protected]
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  Brittney refuses to let lupus win! 13.06.2025 33min

  Brittney embodies the definition of a lupus warrior. 556 Days. 6 different hospitals. Countless surgeries. A lot of people may have given up. She was determined to come home. Listen to her incredible story! Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! [email protected]
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  Lupus Patients & Caregivers Share Stories 12.05.2025 21min

  The Greater Ohio Chapter held the "I Got It Right" Minority Retreat Saturday April 12. Patients and caregivers from across the region celebrated Minority Health Month by learning about Reiki, Meditation, Hair Care, Yoga, and Much More!After the program concluded Sarah, Laura, and Larissa sat down with Alex to share their thoughts on the program, their journey with lupus and the community as a whole. Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! [email protected]
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  Finding Beauty in Having Lupus 25.04.2025 40min

  Kim opens up to Suzanne about her journey with lupus including finding purpose, and how she uses beauty pageants as a platform for change!Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! [email protected]
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  Hair Stylist Educates Clients About Lupus While Behind The Chair 31.03.2025 35min

  Michelle Lamb joins Suzanne to talk about how she educates her community about various health related topics while behind the chair! As the owner of Hairport Beauty & Barber Studio in Cincinnati, Michelle saw a need for more informal education and awareness. During the height of the pandemic she saw an opportunity and seized it! Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! [email protected]
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  Lifestyle Changes To Help Manage Your Lupus 14.02.2025 34min

  Suzanne sits down with Rick Delarosa, CTSP to discuss how lifestyle changes can aid lupus patients in their journey. Rick discusses healthy sleep habits, exercise, and the pillars of a healthy diet. Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! [email protected] Rick Delarosa, CTSPblamelessbodyfitness.comWith over fifteen years as an Owner and prior experience as a Fitness Director, Rick's career is dedicated to the integration of wellness, medical fitness, and corrective exercise to enhance human performance and health. His team at Red Fitness Inc. developed nutrition and exercise programs tailored for special populations, emphasizing the power of fitness medicine in chronic disease management. Rick's approach, the Blamlessbody Routine, is a testament to the passion for teaching a holistic, God-centered lifestyle. It's a reflection of a mission to empower individuals in their journey towards optimal health, combining spiritual, mental, and physical disciplines. His cutting-edge method has been honed through decades of hands-on experience, positively impacting diverse age groups and fostering sustainable health transformations.
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  Episode 44 - The Year Ahead! 30.01.2025 39min

  Suzanne & Alex sit down to layout what the chapter has planned in the coming year! The Cleveland & Columbus walk dates, our next educational program, support groups, our minority retreat and so much more!
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  New Yorker Moves To Ohio To Help Fight Lupus! 27.12.2024 43min

  Join us for this winter break edition of My Lupus Living Room as we get to know Chris, the newest member of the LFA,GOC Team! Chris is our events assistant and moved from Long Island, New York to help us with educational programs, our walks and everything in between! Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! [email protected]
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  Episode 42 - Roberta & Jessie - Mother and Daughter Fighting Together 27.11.2024 39min

  Roberta and Jessie sat down with Suzanne just after the Cleveland Walk To End Lupus Now. This Mother/Daughter duo have an amazing story that we thought was fitting to share during the holiday season. Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! [email protected]
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  Episode 41 - Medicare Changes 2025 - Becky Hayward - OSHIIP 24.10.2024 34min

  Suzanne is joined by Becky Hayward, The Outreach & Education Supervisor, from the Ohio Senior Health Insurance Information Program (OSHIIP). Becky discusses important changes coming to Medicare for 2025 that patients will want to consider during this open enrollment season!
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  Episode 40 - Chad Limones - Aurinia Pharmaceuticals 15.10.2024 28min

  On this episode Suzanne is joined by Chad Limones from Aurinia Pharmaceuticals to discuss lupus nephritis. The two have a broad conversation about what exactly lupus nephritis is, the warning signs, and what resources are available for patients that have been diagnosed or suspect they have lupus nephritis. The information discussed is not meant to treat, diagnose, or otherwise recommend specific treatment plans to patients. Always discuss what options are best for you with your medical team first! Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! [email protected]
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  Addressing Mental Health Challenges For Lupus Patients 26.09.2024 48min

  Suzanne sits down with Dr. William Fikter, a Psychiatrist, with Signature Health. They discuss the challenges that lupus patients may face with mental health and the ways that Signature Health and the LFA,GOC can help! If you would like to share your story, or have a topic you think would benefit lupus patients, contact our shows producer:Alex [email protected]
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  Episode 38 - Steve Perhach - Being a Supportive Partner 29.08.2024 41min

  Suzanne sits down with Steve Perhach to talk about his experience with being married to someone with lupus.  Steve’s wife, Kelly, is a brave lupus warrior who has had her share of ups and downs throughout her journey.  They are both heavily involved in their community and spend time volunteering at various organizations If you would like to share your story, or have a topic you think would benefit lupus patients, contact our shows producer Alex by email - [email protected] Check out our channel ⁠ @lupusgreateroh 
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  Episode 37 - Hannah Powell 24.07.2024 38min

  Suzanne joined by Hannah Powell, a relatively newly diagnosed patient who has already had her fair share of trials and tribulations. Hannah talks candidly about her diagnosis, the challenges she's faced and what finding the Walk To End Lupus Now has meant to her. If you would like to share your story, or have a topic you think would benefit lupus patients, contact our shows producer Alex by email - [email protected] Check out our channel  @lupusgreateroh