On the tip of my tongue - talking about Aphasia

On the tip of my tongue - talking about Aphasia

Jonathan Hirons and Rob Edwards
País UK
Géneros Society & Culture, Health & Fitness, Mental Health, Personal Journals
Idioma EN-GB
Episódios 34
Último 22.05.2026

Jonathan Hirons shares his personal journey after suffering a stroke and being diagnosed with aphasia. He discusses the challenges he faced with speaking, reading, and writing, as well as the support from his family. The podcast aims to raise awareness and provide insights into living with aphasia.

Episódios

  • Speak Up for Aphasia: A Global Awareness Campaign Update 22.05.2026 14min
    Send us Fan Mail Speak Up for Aphasia: A Global Awareness Campaign Update Guest Claire Bennington updates on fundraising for an international aphasia awareness campaign creating a suite of animated videos in multiple languages, launched worldwide with one consistent message. The Tavistock Trust for Aphasia has pledged £35,429 if matched; the campaign is at 57% (about £22,304/42,000 AUD) and aims to raise the remainder by end of June 2026, with a global launch targeted for Aphasia Awareness M...
  • Life Beyond Aphasia: Supporting Care Partners and Building a Movement 26.03.2026 27min
    Send us Fan Mail Hosts Rob Edwards and Jonathan Hirons introduce guest, Genevieve Richardson, a US speech-language pathologist, focuses on supporting “care partners,” arguing recovery improves when caregivers receive training and support to prevent burnout. They compare UK and US support systems, discussing variability in access, the role of insurance and advocacy, and the importance of in-person and online groups to combat isolation. Genevieve describes her telepractice, 12-month care partne...
  • Hanka Mayhew: The Multilingual Advocate for Aphasia Awareness" 06.03.2026 12min
    Send us Fan Mail Hanka Mayhew: A Polyglot’s Journey Through Aphasia and Advocacy Hanka Mayhew lived in Spain for 11 years with her husband and three children, speaking five languages and working as an English teacher and translator until a massive brain bleed left her with aphasia and unable to speak. After three months in hospital in Spain and three in England, she spent a year in a wheelchair relearning how to live. On the Tip of My Tongue podcast, she explains that English and German are ...
  • Finding Words: AI and Aphasia 09.02.2026 18min
    Send us Fan Mail In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons with guest Dr. Abi Roper explore how artificial intelligence can assist people with Aphasia in finding their voices again. The discussion covers the ways AI aids in simplifying text, improving written communication, and developing speech recognition technologies. The episode features Jez Hodgkinson, who created an AI-driven app to help with word-finding and introduces Robert Baldcock, a music...
  • Bridging the Gap: AI and Aphasia with Dr. Abi Roper 29.12.2025 31min
    Send us Fan Mail In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the world of AI and its applications in treating Aphasia, a debilitating condition affecting language abilities, following brain injuries like strokes. Joining them is Dr. Abi Roper from City, St. George's University, London. Dr. Roper discusses how AI tools, like speech recognition technologies and AI-driven text simplification, benefit individuals with Aphasia by aiding communicat...
  • Understanding Aphasia: Personal Stories and Community Support 09.12.2025 26min
    Send us Fan Mail In this episode, Rob Edwards and Jonathan Hirons host Chris Greenhough, a stroke survivor with aphasia who leads support groups, and Lisa Thomas, a senior speech and language therapist with the NHS. They discuss the impact of aphasia, a condition affecting the brain's language capabilities, and the importance of community support and therapy. Chris shares his journey of recovery and involvement in running aphasia support groups, while Lisa talks about the challenges and succe...
  • AI and Aphasia: Overcoming Communication Barriers - S3 Ep 8 with Jez Hodgkinson 22.10.2025 27min
    Send us Fan Mail AI and Aphasia: Overcoming Communication Barriers In this episode of 'On the Tip of My Tongue' podcast, Jez shares his personal journey with Aphasia following a severe stroke in 2016. He discusses the challenges he faced in communicating and how he overcame them by starting a local Aphasia support group during the COVID-19 pandemic. Jez also delves into his long-standing interest in AI, dating back to the 1980s, and explains how AI has significantly advanced in recent years....
  • On the tip of my tongue Series 3 Episode 7 - "Therapy Notes: Elizabeth Nightingale" 15.10.2025 22min
    Send us Fan Mail Transformative Power of Music Therapy with Elizabeth Nightingale In this podcast episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons are joined by Elizabeth Nightingale, a neurological music therapist. The discussion delves into the impactful role of music therapy across various fields, including stroke recovery, pediatrics, and palliative care. Elizabeth shares insights into the innovative programs at Chilton Music Therapy, which blend music with comm...
  • International Aphasia Awareness Campaign with Claire Bennington 07.09.2025 24min
    Send us Fan Mail International Aphasia Awareness Campaign with Claire Bennington In this episode of 'Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons speak with Claire Bennington, chairperson of the Australian Aphasia Association and an experienced speech and language therapist. Claire shares her extensive experience working with adults with Aphasia, details her involvement with the Australian Aphasia Association since 2018, and discusses her PhD project, which focuses on co-designin...
  • Robert Baldock's Voice of Recovery, Music and Aphasia 03.08.2025 11min
    Send us Fan Mail Overcoming Aphasia: Robert Baldock’s Journey and Advocacy This episode of 'On the Tip of My Tongue' features Robert Baldock, a Scottish-based composer and new media artist who experienced a severe ischemic stroke in 2017, resulting in acute aphasia and severe verbal dyspraxia. Robert shares his journey through his stroke, the challenges he faced with communication, and his path to recovery. He discusses his innovative use of technology and alternative communication methods, ...
  • Life in the key of Aphasia - Graham Hall 24.06.2025 12min
    Send us Fan Mail Join us as Graham Hall shares his inspiring journey through music and Aphasia in our newest episode of "On the Tip of My Tongue". Learn how his passion for percussion and songwriting helps him overcome challenges. Listen today! 😊 #Aphasia #MusicHealing #Podcast Living with Aphasia: A Journey Through Music and Recovery Rob Edwards and Jonathan Hirons discuss the impact of Aphasia following a stroke experienced by Graham 10 years ago. The podcast, titled 'On the Tip of My Tong...
  • The Aphasia Awareness Month Special 15.06.2025 23min
    Send us Fan Mail Aphasia in Popular Culture and Awareness: Exploring the Silent Struggle In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the world of Aphasia—a condition caused by brain injury that significantly impacts communication abilities. They discuss its portrayal in popular culture, specifically referencing a character with Aphasia in the detective series 'Department Q.' The hosts highlight the importance of Aphasia awareness, especially...
  • Navigating Conversations with Aphasia: Insights from Iain Stansfield 19.05.2025 13min
    Send us Fan Mail Navigating Conversations with Aphasia: Insights from Iain Stansfield In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons explore the intricacies of living with aphasia through a conversation with Iain Stansfield and Dr. Suzanne Beeke. Iain shares his personal journey following a stroke, emphasising the challenges of communicating with aphasia and the impact on relationships. The discussion delves into experiences from the 'Better Conversations...
  • Dan's Journey: Triumph Over Aphasia 09.05.2025 11min
    Send us Fan Mail Dan's Journey: Triumph Over Aphasia In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons delve into the life of Dan Sutton, who suffered severe head injuries from a cycling accident in 2016. These injuries resulted in Aphasia and mobility challenges. Despite his struggles, Dan founded the Minds Over Matter Social Group to create a supportive community for individuals with brain injuries. The episode explores Dan's daily routines, his love for s...
  • Breaking Barriers: Disability Awareness and Inclusion with Sarah Petherbridge 08.04.2025 33min
    Send us Fan Mail Breaking Barriers: Disability Awareness and Inclusion with Sarah Petherbridge In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons discuss the challenges and misconceptions surrounding disabilities, particularly aphasia. They are joined by Sarah Petherbridge, a disability trainer and speaker who shares her experiences of living with profound deafness and working in the corporate sector. Sarah emphasizes the importance of creating inclusive work...
  • Resilience and Recovery: Talia Lazarus' Inspiring Journey 19.03.2025 39min
    Send us Fan Mail In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons welcome Talia Lazarus, a presenter, broadcaster, and host of the mental health podcast, 'I Got Back Up.' Talia shares her harrowing story of a devastating electric scooter accident in 2021, which resulted in serious leg injuries and an 18-month rehabilitation journey. She discusses her physical and mental recovery, overcoming multiple surgeries, and even achieving the incredible feat of runnin...
  • Brain Injury and Returning to Work - Tamsin Keyes of Headway 11.03.2025 27min
    Send us Fan Mail Understanding Acquired Brain Injuries: Challenges and Support Systems plus Returning to Work In this episode, Jonathan interviews Tamsin Keyes, the Publications and Research Manager at HEADWAY, the Brain Injury Association. Tamsin provides an in-depth explanation of what constitutes a brain injury, ranging from traumatic incidents to medical complications like strokes and aneurysms. She also outlines the difficulties individuals face when returning to work post-injury, inclu...
  • Bring on the nouns - Graham Hall's take on Aphasia 23.02.2025 33min
    Send us Fan Mail Overcoming Aphasia: The Journey of Graham Hall In this episode of 'On the Tip of My Tongue,' hosts Rob Edwards and Jonathan Hirons discuss aphasia with Graham Hall, an orchestral percussionist who suffered a stroke a decade ago. Graham shares his experiences dealing with aphasia, its impact on his career, and the challenges of regaining his speech and musical abilities. Despite losing the joy in playing music, Graham found fulfilment in music arrangement and preparation. The...
  • Overcoming Aphasia - Nigel Cheffers-Heard and Paula Fernley 04.02.2025 37min
    Send us Fan Mail Surviving Stroke and Navigating Aphasia: Nigel's Story This podcast episode titled 'On the Tip of My Tongue' features Rob Edwards and Jonathan Hirons discussing aphasia, a language impairment often caused by a stroke or brain injury. They interview Paula Fearnley and Nigel Cheffers-Heard to hear Nigel's journey of recovering from a stroke that resulted in aphasia. Paula shares her challenges as a caregiver, their struggles with the healthcare system, and Nigel's progress ove...
  • Emma Rich: Battling Aphasia and Advocating for Neuro Rehab 09.01.2025 35min
    Send us Fan Mail Emma Rich: Battling Aphasia and Advocating for Neuro Rehab In this episode, Emma Rich, Charity Coordinator at Say Aphasia, shares her harrowing journey with severe brain injury and subsequent aphasia. She recounts her critical medical emergency, rehabilitation experiences, and the crucial role of neuroplasticity in her recovery. Emma discusses the importance of speech therapy, community support groups, and the uneven access to rehabilitation services. Advocating for better s...

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