Inchstones with Sarah | Autism Advocacy & Caregiver Stories

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  Who Speaks for Profound Autism? The Fight Over the Future of Autism Research with Tyler Hudson & Olivia Rojo 18.08.2026 34мин

  Who gets represented when the government decides the future of autism research? In this episode of INCHSTONES, Sarah Kernion is joined by advocates Tyler Hudson and Olivia Rojo for an urgent conversation about profound autism, caregiver stories, special needs parenting, and the families asking federal autism research to better reflect people with the most significant support needs. At the center of the conversation is the Interagency Autism Coordinating Committee (IACC) and its working draft for the next federal autism strategic plan. Sarah, Tyler, and Olivia discuss why the proposal has generated such intense debate—and why families raising children with profound autism believe this moment could help bring greater attention to a population they say has too often been missing from autism research.But this conversation goes far beyond one government document.What should autism research be trying to understand? Should researchers investigate causes, regression, medical complexity, communication challenges, gastrointestinal problems and other co-occurring conditions? How do we improve quality of life for autistic people today while still investigating the most disabling presentations of autism?And perhaps most importantly: who speaks for autistic people who cannot advocate for themselves? Tyler and Olivia discuss the tension between autism self-advocacy and parent advocacy, including their concern that conversations about autism acceptance can sometimes fail to represent families living with profound disability. They argue that acknowledging severe disability does not diminish an autistic person's dignity—and that accepting an autistic person and wanting to understand the causes of their suffering are not mutually exclusive. Olivia also shares the reality behind her advocacy: she is moving to another state seeking better care for her daughter while leaving her older daughter behind. Her family's experience opens a larger conversation about autism sibling dynamics, caregiver stress, profound care needs, and what happens when today's siblings become tomorrow's next of kin.Tyler shares his own family's experience trying to understand his son's recurring gastrointestinal problems and the exhaustion of parents being told, once again, that they are essentially responsible for experimenting, observing, adjusting, and trying to determine what helps their child.The three also confront a difficult reality of nonverbal autism and special needs parenting: much of the labor and suffering involved is invisible to people who have never lived it. Families may navigate dysregulation, communication barriers, medical issues, hypervigilance, sibling impact, and uncertainty about lifelong care—while simultaneously being criticized for talking publicly about those realities. This isn't a conversation asking for pity.It's a conversation asking for visibility, research, better systems, and the willingness to remain curious about what we still don't understand about autism. As Sarah says near the end of the episode: Severity is not the opposite of dignity. Families can fully love and accept an autistic person while still asking why they are suffering, what medicine may be missing, and what science still needs to understand.In This Episode00:00 — Why Sarah, Tyler and Olivia came together for this conversation01:55 — What families should understand about the IACC working draft03:25 — “Autism is not a reason to stop looking”03:50 — Profound autism and representation in autism research06:35 — Why visibility matters for families with significant support needs07:05 — Olivia's decision to move states seeking better care for her daughter08:45 — Profound autism, terminology and representation09:50 — Who advocates for autistic people who cannot self-advocate?14:05 — What the proposed autism research framewor...
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  What Fiction Can Teach Us About Special Needs Parenting | Jacqueline Friedland, Author of Breathing Underwater 14.08.2026 22мин

  What can fiction reveal about special needs parenting that facts and statistics sometimes cannot? In this episode of INCHSTONES, Sarah Kernion talks with author Jacqueline Friedland about Breathing Underwater, her new novel exploring autism, caregiving, adolescence, independence, identity, and the extraordinary power of having one person who refuses to stop believing in you.Jacqueline was raised by a professor of special education and began writing fiction in part because she believed stories could create empathy and help people see experiences outside their own. In Breathing Underwater, that mission takes shape through Leo, a 16-year-old autistic boy, and McKenna, a college swimmer whose seemingly successful life is quietly falling apart.Their relationship raises questions that will feel deeply familiar to many special needs parents: How much support is enough? When does helping become holding on too tightly? How do we prepare autistic children for adulthood when so many services disappear after high school? And how do we learn to live without certainty about what comes next? Sarah and Jacqueline also discuss the enormous importance of swimming and water safety for autistic children, including the elevated risk of drowning that helped inspire Jacqueline's novel. Their conversation moves beyond statistics, though, into the sensory and emotional experience of water—and the connection, regulation, and joy that can sometimes exist there. They also explore caregiver stories, maternal identity, invisible labor, the desire to control every variable, and the difficult practice of allowing other people to help. Jacqueline shares one of the central realizations she had while developing Leo: difference does not automatically mean something needs to be fixed. A child's challenges and strengths can coexist, and autism cannot be reduced to one universal experience or one universal solutioAt its heart, this conversation is about support—not saving someone by changing who they are, but becoming the person who remains beside them while they discover what they're capable of.In This Episode01:30 — Why Jacqueline chose fiction to tell stories that matter03:00 — Writing an autistic teenager instead of a young autistic child05:00 — The “services cliff” after high school and preparing for adulthood06:00 — How much support is too much—or not enough?07:45 — Why one person believing in a child can change everything09:45 — Autism, swimming, water safety, and drowning risk11:15 — The sensory experience of being underwater13:00 — Caregiving and the realization that not everyone needs to be “fixed”15:30 — Invisible labor, motherhood, stress, and learning to relinquish control18:30 — McKenna, college-student homelessness, and what happens without a support system20:00 — Why there is no “struggle Olympics” in parenting21:00 — Finding beautifully typical moments inside nonverbal autism22:30 — Why caregiver stories can increase empathy and change how we see one anotherJacqueline Friedland is the USA Today and Amazon bestselling author of historical and contemporary women’s fiction. After earning degrees from the University of Pennsylvania and NYU Law School and practicing as a commercial litigator, she received her MFA in creative writing from Sarah Lawrence College. Her novels have earned multiple honors, including Readers’ Favorite Gold Medals, a Kirkus Reviews Best Indie Book of the Year selection, and a SheReads Best Book Club Pick. Her sixth novel, Breathing Under Water, arrives from Harper Muse in August 2026 following acclaim from Booklist, People, Zibby Owens, and the Jewish Joy Book Club. She lives in Westchester, New York.Read Jacqueline Friedland's Breathing Underwater, a novel exploring autism, caregiving, identity, swimming, sup...
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  Autism Advocacy: Why Access to Care Matters More Than Ever | Dr. John Gaitanis on Meadow 06.08.2026 8мин

  What happens when families know a treatment could help their child—but can't access it? In this episode of Inchstones, Sarah Kernion sits down with pediatric neurologist Dr. John Gaitanis to discuss autism advocacy, autism therapy options, and why Meadow was created to help families access individualized care beyond a diagnosis.For many families, an autism diagnosis is only the beginning. The harder question often comes next: Where do we go from here? In this follow-up conversation, Sarah Kernion and pediatric neurologist Dr. John Gaitanis explore why so many parents struggle to access testing, treatments, and physicians willing to investigate the underlying biology affecting their child's health and development. Together, they discuss the vision behind Meadow, a telehealth platform designed to expand access to physician-guided care for autistic children and families. Dr. Gaitanis explains why treatments such as leucovorin, gut microbiome testing, mitochondrial support, and other evidence-informed interventions are often difficult for families to obtain—even when research demonstrates safety and potential benefit. Rather than promoting a single solution, he describes a whole-child approach that asks a different question:What is preventing this child from feeling and functioning at their best? Sarah and Dr. G also discuss communication, pain, nervous system regulation, caregiver advocacy, and why behavior should never be viewed in isolation. For many non-speaking autistic individuals, behaviors such as aggression or self-injury may be expressions of untreated pain, inflammation, sensory challenges, or an inability to communicate effectively. Looking beyond behaviors and searching for root causes has the potential to improve quality of life for both children and their families.  Whether you're beginning your autism diagnosis journey or looking for additional autism support resources, this episode encourages families to ask better questions, seek individualized care, and remain open to evidence-based approaches that prioritize the whole child.Resources Learn more about Meadow Health and Dr. John Gaitanis' work in individualized autism care. Subscribe to the Inchstones Podcast for conversations about autism advocacy, caregiver stories, and neurodivergent parenting, featuring physicians, researchers, caregivers, and advocates working to improve the lives of autistic individuals and their families.
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  What a Special Education Teacher Taught Me About Presuming Competence | Zack Ponder 04.08.2026 28мин

  Castos DescriptionEpisode SummaryWhat happens when a special education teacher spends years working with profoundly disabled students—and then realizes the biggest lesson wasn't about teaching at all? In this episode of Inchstones, Sarah Kernion sits down with former special education teacher and Unspecial Podcast host Zack Ponder to explore caregiver stories, autism advocacy, neurodivergent parenting, and why presuming competence changes everything.Full Episode DescriptionBefore launching the Unspecial Podcast, Zack Ponder spent years teaching students with profound autism, complex communication needs, and significant disabilities. Those experiences fundamentally changed the way he understands intelligence, behavior, caregiving, and human connection.In this thoughtful conversation, Sarah and Zack discuss what it means to presume competence, why outward behavior rarely tells the full story, and how educators, parents, and clinicians can better support children by seeing their strengths before their limitations. Zack shares stories from the classroom that forever shaped his understanding of autism communication, emotional regulation, and the incredible capabilities that often remain hidden beneath motor planning challenges. zack-sarah.txtTXTThe conversation also explores fatherhood, caregiver resilience, nervous system regulation, homeschooling, balancing family life during a spouse's cancer journey, and why caring for yourself is essential if you hope to co-regulate with the children who depend on you.Together, Sarah and Zack examine why parents should trust what they observe, why difficult conversations strengthen advocacy, and how small moments of connection often become the most meaningful inchstones.In this episode, we discuss:autism advocacy through presuming competencecaregiver stories from both the classroom and homeneurodivergent parenting and emotional regulationprofound autism care and communicationautism education strategiescaregiver mental health and nervous system regulationfatherhood and disability caregivingspecial education advocacywhy connection matters more than compliancefinding hope through everyday inchstonesWhether you're raising an autistic child, working in special education, supporting neurodivergent families, or simply trying to become a calmer parent, this episode offers a hopeful reminder that every child deserves to be seen beyond what the world immediately notices.In This Episode02:30 — Why Zack left special education but never left the mission05:00 — What profound autism taught him about seeing the unseen08:00 — Caregiver burnout and protecting your nervous system11:00 — Co-regulation begins with the parent14:00 — Presuming competence in non-speaking children17:00 — The classroom story that changed everything20:00 — Fathers, strength, and disability parenting24:00 — Why advocacy should create collaboration—not conflict27:00 — Finding hope in the smallest everyday momentsResourcesLearn more about Zack Ponder and listen to the Unspecial Podcast, where he shares conversations with parents, educators, and disability advocates. Subscribe to the Inchstones Podcast for more conversations about autism advocacy, caregiver stories, and neurodivergent parenting that help families feel seen, supported, and understood. Read more essays on the Inchstones Substack.
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  Caregiver Stories: Telling the Truth About Disability Without Losing Hope | Elyse Davis 24.07.2026 32мин

  Can you tell the truth about disability parenting without losing hope? In this episode of Inchstones, Sarah Kernion sits down with caregiver advocate Elyse Davis to explore caregiver stories, neurodivergent parenting, grief, resilience, and why honest conversations help families feel less alone. After years of feeling like she didn't quite fit anywhere, Elyse Davis decided to stop softening her family's story.Instead of repeating comforting platitudes, she began speaking honestly about the emotional complexity of raising a child with significant developmental disabilities—the grief, the love, the frustration, the joy, and the deep transformation that can all exist at the same time. Her words resonated with thousands of caregivers who quietly thought, Finally, someone said it. In this conversation, Sarah and Elyse explore what happens when families give themselves permission to hold contradictory emotions without guilt. They discuss disability parenting, caregiver mental health, sibling dynamics, communication challenges, navigating educational systems, and why parents should never have to minimize their reality to make others comfortable.They also explore the often-overlooked complexity of children whose diagnoses don't fit neatly into one category, the importance of individualized communication supports, and how parents become their child's most effective advocate by learning to trust what they observe every day.This episode explores:caregiver stories and honest conversationsautism advocacy beyond labelsneurodivergent parenting and complex diagnosescaregiver emotional supportnavigating IEPs and educational advocacysibling relationships in disability familiesgrief, resilience, and acceptancewhy hope grows stronger when it's built on truthWhether you're newly navigating a diagnosis or years into your caregiving journey, this conversation offers something rare: permission to tell the truth about your life while still believing in your child's future.In This Episode02:00 — Why Elyse stopped sugarcoating disability parenting06:30 — Holding grief and joy at the same time10:45 — Raising neurotypical and disabled siblings under one roof15:30 — Living between diagnoses and not fitting into one community20:00 — Sign language, communication, and trusting your child's strengths25:00 — Navigating IEPs and advocating within broken systems30:00 — Why caregivers must trust what they see34:00 — The evolving meaning of "Welcome to Holland"Resources Connect with Elyse Davis on Instagram for honest reflections on disability parenting, advocacy, and caregiver life.Subscribe to the Inchstones Podcast for conversations about autism advocacy, caregiver stories, and neurodivergent parenting, featuring parents, clinicians, researchers, and advocates working to help families feel seen and supported. Elyse Davis is a disability mom, content creator, and advocate who shares the honest realities of raising a child with complex needs. Through storytelling, faith, and humor, she explores disability parenting, advocacy, grief, guilt, motherhood, and the everyday moments that connect us. Known for saying the things many parents are thinking but rarely say out loud, Elyse has built a community where families feel seen, understood, and a little less alone as they navigate the unexpected journey of disability parenting.
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  Caregiver Stories: What My Daughter's Disability Taught Me About Living with Evan Rosenblum 22.07.2026 32мин

  What happens when the life you planned disappears overnight? In this episode of Inchstones, Sarah Kernion sits down with former TMZ executive producer Evan Rosenblum to explore caregiver stories, disability parenting, neurodivergent families, and how raising a child with profound disabilities transformed his understanding of purpose, fatherhood, and joy.When Evan Rosenblum's daughter Sydney arrived at just 25 weeks gestation, everything changed in an instant. After 143 days in the NICU, multiple surgeries, a traumatic brain injury, and a long list of medical diagnoses, Evan found himself navigating a reality he never imagined while desperately trying to hold onto the life he thought he was supposed to have.  In this deeply honest conversation, Sarah and Evan explore what happens when identity, career, expectations, and parenthood collide. Together they discuss the emotional journey of becoming a special needs father, processing grief, balancing work and caregiving, and learning to see disability not as the end of a story—but the beginning of a completely different one. Evan shares how leaving his career at TMZ allowed him to embrace a new definition of success, why his daughter Sydney became one of his greatest teachers, and how his son is growing into a compassionate sibling whose understanding of disability is quietly changing the world around him.This episode is about more than disability. It's about what happens when life forces you to become someone new. Whether you're navigating an autism diagnosis, raising a child with profound disabilities, supporting neurodivergent families, or simply searching for hope inside an unexpected life, this conversation is a reminder that joy can exist alongside grief—and that sometimes the life you never planned becomes the one you were always meant to live.In This Episode02:00 — Sydney's birth at 25 weeks and surviving 143 days in the NICU06:15 — Identity, work, and trying to hold onto a "normal" life09:30 — Processing grief after a life-changing diagnosis13:00 — Why fathers experience caregiving differently17:15 — Anger, healing, and emotional recovery21:00 — Raising siblings alongside children with disabilities25:00 — Inclusion, friendship, and changing the next generation29:00 — Adventure, surfing, Disney, and giving children full lives33:00 — Living in the present instead of fearing the future ResourcesLearn more from Evan Rosenblum by reading his Substack, where he writes about fatherhood, disability, caregiving, and finding meaning through unexpected life experiences. Subscribe to the Inchstones Podcast for more conversations about autism advocacy, caregiver stories, and neurodivergent parenting featuring parents, clinicians, researchers, and advocates helping families thrive.
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  Parent the Child, Not the Diagnosis | Nora Canzoneri on Autism, Acceptance, and Letting Go 10.07.2026 32мин

  An autism diagnosis changes everything—but it should never become the only thing you see. In this episode of Inchstones, Sarah Kernion sits down with longtime friend and autism mom Nora Canzoneri for an honest conversation about autism advocacy, caregiver stories, and learning to parent the child before the diagnosis. ⸻ Full Episode Description When Nora Canzoneri’s son Cam received his autism diagnosis in 2018, she walked out of a developmental pediatrician’s office with a diagnosis, a list of books, and instructions to find ABA therapy. Like so many parents beginning an autism diagnosis journey, she was left with more questions than answers. Years later, Nora reflects on what she wishes she had known from the beginning: while autism is an important part of her son’s life, it is not the whole story. Together, Sarah and Nora explore neurodivergent parenting, caregiver experiences, the pressure to act quickly after an autism diagnosis, and the cultural expectations that quietly shape how parents measure progress. They discuss the urgency many families feel to “do everything right,” the grief of letting go of imagined timelines, and the freedom that comes from recognizing inchstones instead of milestones. The conversation also explores family travel, adapting expectations, sensory regulation, anxiety, and raising an autistic child who continues to surprise everyone—including his mother—with his humor, memory, resilience, and personality. This episode explores: * autism advocacy through everyday parenting* caregiver stories and shared experiences* autism diagnosis journeys* parenting autistic children beyond the diagnosis* autism family dynamics* caregiver emotional support* autism parenting advice* understanding neurodiversity through acceptance rather than comparison* finding peace in the unexpected Whether you’re newly navigating an autism diagnosis or years into your family’s journey, this conversation is a reminder that your child is far more than a checklist of behaviors or developmental milestones. They are becoming who they are—and you are becoming the parent they need. ⸻ In This Episode 00:00 – Remembering diagnosis day and the emotions that followed 04:00 – Walking out with an autism diagnosis and more questions than answers 07:00 – The urgency parents feel after diagnosis 10:00 – Letting go of developmental timelines 13:30 – Expectations, acceptance, and finding inchstones 16:30 – Why autism parenting changes as children grow older 19:00 – Traveling with an autistic child and embracing adventure 23:00 – Understanding behavior through connection instead of fear 26:00 – Parenting the child—not the diagnosis 30:00 – Advice for parents beginning their autism diagnosis journey ⸻ Listen to more episodes of the Inchstones Podcast, where Sarah Kernion shares caregiver stories, champions autism advocacy, and explores neurodivergent parenting through honest conversations with parents, clinicians, researchers, and advocates helping families feel seen, supported, and understood.
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  Caregiver Stories: Choosing Love Through the Unexpected Journey of Motherhood with Valerie Probstfeld 07.07.2026 27мин

  Every mother begins with expectations. Few of us imagine how deeply motherhood will transform our identity. In this episode of Inchstones, Sarah Kernion sits down with author and nurse practitioner Valerie Probstfeld, creator of To Mom Is to Love, for a heartfelt conversation about caregiver stories, neurodivergent parenting, grief, identity, and learning to choose love when life unfolds differently than expected. Valerie shares the experience of becoming a mother in the NICU, where losing control forced her to rethink what motherhood truly means. Together, she and Sarah explore how unexpected diagnoses, profound autism, medical trauma, and unmet expectations reshape caregivers—and why healing often begins by releasing the illusion of control. From autism parenting advice and caregiver emotional support to the role of nature, community, and nervous system regulation, this conversation reminds every parent that growth is rarely linear. Whether you’re raising a child with autism, navigating a difficult diagnosis, or simply learning to trust yourself again, this episode offers encouragement to recognize the sacredness hidden inside ordinary moments. In this episode: 02:10 — Becoming “Mom” and the unexpected identity shift of motherhood 06:10 — Why unmet expectations can feel more painful than reality itself 10:20 — Medical trauma, grief, and feeling unseen as a caregiver 13:10 — Releasing the illusion of control through motherhood 15:00 — Nature, resilience, and why growth is never linear 18:00 — Water, nervous system regulation, and profound autism 21:15 — Why caregivers need community more than ever 24:00 — Choosing love over fear in everyday parenting 27:00 — Finding meaning through the smallest inchstones of motherhood Resources Learn more here about Valerie Probstfeld and her book To Mom Is to Love. Subscribe to the Inchstones Podcast for more conversations about autism advocacy, caregiver stories, neurodivergent parenting, and practical encouragement for families raising autistic children. Read Sarah’s caregiver essays on the Inchstones Substack.
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  Beyond the Autism Diagnosis: Seeing the Child Before the Label | Dr. John Gaitanis 30.06.2026 39мин

  What if autism isn’t one condition to treat, but many different biological stories waiting to be understood? In this episode of Inchstones, Sarah Kernion sits down with pediatric neurologist Dr. John Gaitanis to explore why autism care should begin with understanding the individual child—not simply the diagnosis. Together they discuss autism advocacy, root cause medicine, caregiver experiences, neurodevelopment, inflammation, motor planning, and why families often recognize important patterns long before medicine does. Dr. Gaitanis challenges the idea that autism is a single biological condition, explaining why many children share a diagnosis while presenting with remarkably different medical histories, developmental pathways, and support needs. He shares why physicians should focus on understanding each child’s unique biology, why systemic inflammation and developmental regression deserve closer attention, and how artificial intelligence may help uncover patterns that families have recognized for years. The conversation also explores the emotional side of neurodivergent parenting. Sarah and Dr. G discuss maternal pattern recognition, caregiver stress, nervous system regulation, sleep deprivation, and why supporting parents is inseparable from supporting autistic children. Whether you’re navigating a recent autism diagnosis, raising a child with profound autism, searching for autism therapy options, or simply looking for thoughtful autism advocacy grounded in curiosity rather than certainty, this episode offers a hopeful framework for asking better questions. In this episode: 03:10 — Why “autism” may describe many different biological conditions07:30 — Maternal pattern recognition and why caregivers often notice problems first10:05 — Systems thinking versus siloed medicine in autism care14:00 — Why two autistic children can have completely different biological profiles18:15 — Artificial intelligence and the future of autism diagnosis and personalized medicine21:05 — Whole-body dyspraxia, motor planning, and autism communication27:20 — How physicians can move beyond diagnostic labels to see the whole child35:45 — Caregiver burnout, chronic stress, and protecting parent health41:05 — Why trusting maternal intuition matters throughout the autism diagnosis journey Resources Learn more about Dr. John Gaitanis and Meadow BioSciences. Subscribe to the Inchstones Podcast for more conversations about autism advocacy, caregiver stories, neurodivergent parenting, profound autism care, and practical support for families raising autistic children. Read more caregiver essays on the Inchstones Substack.
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  Autism Fatherhood: When My Son Brought Me to My Knees | Tommy of Spectrum in Camouflage 25.06.2026 32мин

  What does autism teach a father about strength? In this episode of Inchstones, Sarah Kernion sits down with Tommy of Spectrum in Camouflage for an honest conversation about autism fatherhood, faith, mental health, and how raising a nonspeaking autistic son completely transformed his understanding of success, purpose, and what truly matters. When Tommy’s son Wyatt began losing language around age two and a half, everything he thought he knew about fatherhood changed. As a construction business owner, husband, and father, he spent years believing strength meant fixing problems. Autism forced him to discover a different kind of strength: presence, surrender, and learning to live one inchstone at a time. Together, Sarah and Tommy explore autism parenting, profound autism, fatherhood, caregiver mental health, marriage, faith, and the quiet transformation that often happens inside parents long before anyone else notices it. This conversation explores: * autism fatherhood* nonspeaking autism* profound autism* caregiver mental health* autism parenting and marriage* faith during difficult seasons* living in the present moment* autism advocacy* parenting beyond societal expectations* finding joy in inchstones instead of milestones Tommy also shares his experience navigating anxiety, depression, and the realization that while he could not fix autism, he could become a different father because of it. His story offers encouragement for autism dads, caregivers, and families searching for hope grounded in reality rather than false promises. ⸻ In This Episode 00:00 – Introducing Tommy and Spectrum in Camouflage02:00 – Becoming a father after years of waiting04:00 – Wyatt’s autism regression and losing language06:00 – Anxiety, mental health, and feeling powerless08:00 – The mountain where everything changed10:00 – Why autism brought Tommy to his knees12:00 – Faith, surrender, and finding purpose through autism15:00 – Success versus significance in fatherhood17:00 – The hidden expectations parents carry19:00 – Why inchstones matter more than milestones21:00 – Learning to see growth differently23:00 – Autism, communication, and presence beyond words25:00 – Living where your boots are: staying present today28:00 – Parenting typical and autistic children differently31:00 – Mental health, nervous system regulation, and resilience33:00 – Speaking openly so other autism dads feel less alone Listen to more episodes of the Inchstones Podcast, where Sarah Kernion shares caregiver stories, autism advocacy, profound autism experiences, neurodivergent parenting, and honest conversations that help families feel seen, understood, and less alone.
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  Why Autism Moms Never Stop Listening for Footsteps with Libby Hudson 16.06.2026 28мин

  What happens when years of caregiving, hypervigilance, grief, and responsibility finally catch up with a mother? In this episode of Inchstones, Sarah Kernion sits down with Libby Hudson for an unfiltered conversation about profound autism, marriage, caregiver burnout, grief, and what it takes to survive when your family’s needs seem bigger than your capacity to carry them. Libby and her husband Tyler Hudson have become respected voices in the profound autism community, but behind advocacy and awareness lies a deeply personal story. As their son Lyric entered adolescence, a devastating family loss triggered profound behavioral changes, escalating aggression, and years of living in a near-constant state of vigilance and fear. Libby shares what it felt like to lose her father, watch her son struggle to process grief he could not communicate, and navigate the impossible reality of loving a child while simultaneously fearing what dysregulation might bring next. Together, Sarah and Libby discuss: * profound autism and adolescence* caregiver burnout and nervous system exhaustion* grief and autism* marriage under chronic stress* maternal hypervigilance* supporting autistic adults* emotional collapse and resilience* the importance of asking for help* finding purpose after survival mode The conversation also explores something rarely discussed openly in autism spaces: the cost caregiving can have on a mother’s body, identity, relationships, and health. Libby shares how years of accumulated stress ultimately contributed to a stroke and the difficult changes her family had to make to survive. This episode is for autism moms, caregivers, and families navigating profound autism, aggression, caregiver burnout, marriage stress, grief, and the emotional realities that often remain hidden behind advocacy. In This Episode 00:00 – Living with constant hypervigilance and caregiving stress02:00 – Reading nonverbal communication through behavior and body language04:00 – The death of Lyric’s grandfather and profound grief05:30 – When autism, adolescence, and loss collide07:00 – Aggression, dysregulation, and fear inside the home08:30 – The emotional toll of surviving crisis mode10:00 – Why caregiving changed Libby’s health forever11:30 – A stroke, burnout, and the body keeping score13:00 – Marriage under pressure and redefining family roles15:00 – Learning to ask for what you need17:00 – Why flexibility matters in autism families19:00 – Autism, relationships, and nervous system regulation21:00 – The hidden emotional labor of autism motherhood23:00 – Why support systems matter more than services alone25:00 – Receiving an autism diagnosis 18 years ago27:00 – Grief, acceptance, and adapting to reality29:00 – The lessons profound autism has taught about life and love31:00 – What makes Libby most proud as Lyric’s mother Listen to more episodes of the Inchstones Podcast, where Sarah Kernion shares caregiver stories, profound autism experiences, autism advocacy, and honest conversations about neurodivergent parenting.
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  Horses, Autism, and the Healing Power of Nature | Dana Spett of Pony Power Therapies 11.06.2026 26мин

  What happens when autism support moves beyond four walls and into nature? In this episode of Inchstones, Sarah Kernion sits down with Dr. Dana Spett, founder of Pony Power Therapies, to explore autism, sensory regulation, equine-assisted services, and why connection, movement, and nature can create powerful opportunities for growth. Dana’s journey began as a mother searching for support for her own daughter. What started with one horse and four riders has grown into Pony Power Therapies, a community-centered organization helping children and adults with disabilities connect with horses, farming, nature, and themselves. Together, Sarah and Dana discuss autism parenting, sensory regulation, maternal intuition, nature-based learning, disability inclusion, and the importance of creating environments where autistic individuals can thrive without pressure to conform. Dana shares why traditional approaches are not always enough and how horses offer a unique opportunity for regulation, confidence, connection, and belonging. The conversation explores: * autism and sensory regulation* equine-assisted services* nature-based support for autistic children* maternal intuition and advocacy* disability inclusion and community belonging* farming, purpose, and meaningful work* autism and nervous system regulation* creating supportive environments for neurodivergent individuals Dana also shares how Pony Power supports families across the lifespan, from young children with autism to adults navigating life after age 21, when many formal support systems begin to disappear. This episode is for autism moms, caregivers, educators, therapists, and anyone interested in nature-based approaches to autism support, sensory regulation, disability advocacy, and helping neurodivergent individuals build meaningful lives and connections. In This Episode 00:00 – The mission behind Pony Power Therapies01:00 – Dana’s journey as a social worker and autism mom02:30 – Following maternal intuition instead of rushing to medication04:00 – Why trusting your gut matters in autism parenting05:30 – Equine-assisted services and empowering families06:30 – How autistic children respond to horses and nature08:00 – Sensory regulation through movement and rhythm09:30 – Why horses provide unique nervous system support11:00 – Nature, regulation, and the family system13:00 – Beyond traditional talk therapy approaches14:30 – The role of nature in mental health and autism support16:00 – Nonverbal communication and connection beyond words17:30 – Why leaving the house feels impossible for some families19:00 – Supporting dysregulated autistic children without judgment21:00 – Creating safe spaces for neurodivergent families23:30 – The autism service cliff after age 2125:00 – Farming, employment, and meaningful purpose for autistic adults27:00 – Disability inclusion and reimagining community support Listen to more episodes of the Inchstones Podcast, where Sarah Kernion shares caregiver stories, autism advocacy, profound autism perspectives, neurodivergent parenting, and conversations that challenge us to build more inclusive communities. More about Dr. Dana Spett, DSW  Dr. Dana Spett, DSW, an accomplished professional with a deep commitment to equine-assisted services, nature, and social work is the Founder and Executive Director of Pony Power Therapies, a nonprofit community-based center in New Jersey that connects children and adultswith disabilities or life challenges to the wonders of horses, farming and nature. Dana hasdedicated herself to creating an inclusive and transformative environment guided by nature.Recognizing the power of nature to promote resilience and personal growth, Dana ensures thatPony Power Therapies embodies...
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  What If It’s Not Behavior? Understanding Whole Body Apraxia in Autism with Dr. Dana Johnson 09.06.2026 31мин

  Many parents of non-speaking autistic children carry a quiet certainty: my child understands more than they can show. In this episode of Inchstones, Sarah Kernion sits down with occupational therapist, researcher, and Spellers Method co-creator Dr. Dana Johnson to explore whole body apraxia, motor planning, communication, and why behavior may not tell the whole story. For years, families have been told to trust observable behaviors as the primary measure of understanding. Dr. Johnson challenges that assumption by explaining how motor planning differences can prevent autistic individuals from reliably demonstrating what they know, understand, or intend to communicate. Together, Sarah and Dr. Johnson discuss whole body apraxia, non-speaking autism, presuming competence, sensory regulation, motor coaching, and the ways parents are often dismissed when their observations don’t align with traditional clinical models. The conversation explores: * whole body apraxia and autism* non-speaking autism and communication* motor planning challenges* presuming competence* autism and regulation* maternal intuition and clinical observation* supporting autistic children beyond behavior-based assumptions* co-regulation and caregiver support Dr. Johnson also shares how her work evolved after listening to parents whose experiences challenged what she had been taught professionally. Her message is both practical and hopeful: understanding motor differences can fundamentally change how families, therapists, and educators support autistic children. This episode is for parents, caregivers, educators, therapists, and anyone interested in communication, autism advocacy, profound autism, and understanding what may exist beneath observable behavior. In This Episode 00:00 – Maternal intuition, autism, and the limits of observation02:00 – Why parents are often dismissed by professionals04:15 – The story that led Dr. Johnson to rethink autism therapy05:45 – What whole body apraxia actually means07:15 – Understanding motor planning and communication barriers08:00 – Why behavior does not always reflect understanding09:30 – The backpack example: motor planning in daily life11:00 – Typical childhood behavior versus apraxia12:30 – Why presuming competence matters14:00 – How professionals unintentionally limit autistic children16:00 – Reading ability, communication, and hidden competence17:00 – Regulation, sensory overwhelm, and motor control19:00 – Why parents must regulate themselves first21:00 – The invisible pressure placed on mothers23:00 – Co-regulation and caregiver support25:00 – Building confidence through small wins and inchstones28:00 – Supporting parents, not just children30:00 – The fear every autism parent carries about the future Listen to more episodes of the Inchstones Podcast, where Sarah Kernion explores autism advocacy, caregiver stories, profound autism, communication, neurodivergent parenting, and the small inchstones that shape meaningful lives. About Dr. Dana Johnson:For more than 20 years, Dr. Johnson has worked alongside incredible families who have taught her what true resilience, patience, and hope look like. Through this work, she has learned that two things can be true at once: your child can struggle and make incredible progress at the same time. Recognizing that too many professionals didn't know how to truly help these families, Dr. Johnson created her YouTube channel, “The Autism + Apraxia Doctor,” and expanded her reach across multiple platforms to educate professionals in the autism field. She specializes in helping individuals with complex autism, whole-body apraxia, and other neurodevelopmental disabilities develop intentional motor skills and improve their overall health. Her mission is...
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  Autistic Adulthood, Independence, and Living Your Best Life | Zach Ennis’ Story 30.05.2026 19мин

  What does autistic adulthood actually look like? In this episode of Inchstones, Sarah Kernion sits down with autistic young adult Zach Ennis and his mother, Stacy Ennis, for a powerful conversation about independence, self-advocacy, friendship, community, and building a meaningful life with autism. Too often, conversations about autism stop in childhood. Zach’s story offers something many families are searching for: a glimpse into adulthood, possibility, and the supports that help autistic adults thrive. Zach shares what he enjoys most about his life, from community dinners, theater classes, movies, friendships, and independent living skills to advocating for adults with disabilities. He speaks candidly about communication, relationships, self-confidence, and his hopes for the future. His message is simple but powerful: work hard, be kind, support others, and believe in your potential. Sarah and Stacy also explore the evolution of motherhood, autism advocacy, acceptance, and the unexpected gifts that come from raising and supporting a neurodivergent child into adulthood. Together they discuss communication beyond speech, independence, dignity, self-determination, and why autistic adults deserve opportunities to build full and meaningful lives. This episode explores: * autistic adulthood and independence* autism advocacy and self-advocacy* neurodivergent parenting across the lifespan* community living and social connection* autism and communication differences* supporting autistic adults* friendship, purpose, and belonging* motherhood and lifelong caregiving This conversation is a reminder that autism is not the end of a story. For many families, it is the beginning of a different story filled with growth, connection, community, and possibility. In This Episode 00:00 – Introducing Zach and Stacey Ennis01:15 – Zach shares what he enjoys most about life02:10 – Building independence through community and daily living skills03:00 – Friendship, communication, and social connection03:45 – What Zach wishes people understood about him05:00 – Accomplishments and learning independent living skills06:10 – Feeling seen through autism self-advocacy07:20 – Challenges that people may not notice08:15 – Living your best life and future goals09:00 – Zach’s message about autism and kindness10:15 – What Zach has taught his mother about life12:30 – Friendship, family, and growing into adulthood15:15 – Daily connection between mother and son16:20 – Acceptance, advocacy, and finding joy18:00 – Communication beyond speech and traditional expectations20:00 – Seeing the person beyond the diagnosis Listen to more episodes of the Inchstones Podcast, where Sarah Kernion shares caregiver stories, autism advocacy, neurodivergent parenting, profound autism experiences, and conversations that illuminate the humanity behind every diagnosis.
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  What My Son's Autism Diagnosis Taught Me About Myself | Bari Shore's Story 30.05.2026 19мин

  An autism diagnosis changes more than a child’s future. It changes the people who love that child too. In this episode of Inchstones, Sarah Kernion sits down with Bari Shore for an honest conversation about autism parenting, childhood apraxia, community, motherhood, and the unexpected personal growth that emerges from raising a neurodivergent child. When Bari’s son Dean received his autism and apraxia diagnosis during the pandemic, she found herself searching for answers, support, and connection. Like many autism moms, she experienced relief, grief, uncertainty, and determination all at the same time. But perhaps the biggest surprise was not how much her son would grow. It was how much she would grow too. Together, Sarah and Bari discuss autism parenting, caregiver stories, autism diagnosis journeys, motherhood identity shifts, advocacy, sibling relationships, and the importance of finding people who truly understand your family’s reality. They also explore why support does not always come from large groups, how community can be built one conversation at a time, and what happens when parents learn to celebrate inchstones instead of milestones. This episode explores: * autism parenting after diagnosis* childhood apraxia and autism* caregiver stories and community* motherhood identity and personal growth* sibling relationships and autism* advocacy and communication* autism diagnosis grief and acceptance* parenting autistic children in the present moment For parents navigating autism, apraxia, developmental delays, or the uncertainty that follows diagnosis, this conversation offers honesty, perspective, and hope. In This Episode 00:00 – Finding friendship and community after diagnosis02:00 – The long road to an autism and apraxia diagnosis03:30 – Pandemic parenting and noticing developmental differences04:30 – Relief, grief, and finally having answers05:15 – Becoming “the autism mom” and identity shifts06:00 – Why community became essential06:45 – Cycles of research, burnout, and recovery07:50 – Is autism parenting unfair?08:45 – Celebrating inchstones instead of milestones09:20 – Why the world should adapt to autistic children10:30 – Learning to advocate for yourself as a parent11:45 – Autism parenting and perspective12:30 – Advice for parents receiving a new diagnosis13:45 – Staying present instead of spiraling into the future15:15 – Raising autistic boys and trusting your instincts17:00 – Seeing the child beyond the diagnosis18:20 – Becoming stronger through autism parenting19:45 – Relationships, community, and what matters most Listen to more episodes of the Inchstones Podcast, where Sarah Kernion shares caregiver stories, autism advocacy, neurodivergent parenting, profound autism experiences, and the lessons hidden inside the smallest inchstones.
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  Why Autism Moms Never Fully Relax | Kerry Stevens' Story 29.05.2026 26мин

  Why do so many autism moms feel like they can never fully relax? In this episode of Inchstones, Sarah Kernion sits down with Kerry Stevens for an honest conversation about caregiver burnout, autism motherhood, hypervigilance, and the invisible emotional load that comes with parenting autistic children. Kerry shares the reality of raising her son Connor while balancing work, therapies, school meetings, financial pressure, and the constant responsibility that many special needs caregivers quietly carry every day. Together, Sarah and Kerry explore autism parenting, developmental delays, caregiver exhaustion, IEP advocacy, and the emotional experience of living in a near-constant state of fight-or-flight. Their conversation touches on the grief that can follow an autism diagnosis, the pressure to help your child “catch up,” and the difficult process of accepting a path that looks different than the one you imagined. Kerry speaks candidly about leaving a job that could no longer accommodate the realities of caregiving and the emotional impact of being told her son’s needs were “too much.” This episode explores: * caregiver burnout and autism motherhood* parenting autistic children while working* hypervigilance and nervous system exhaustion* autism diagnosis grief and acceptance* developmental delays and communication challenges* IEP advocacy and trusting parental intuition* balancing therapies, finances, and family life* learning to understand non-speaking communication This episode is for autism moms, caregivers, and families navigating autism parenting, caregiver burnout, developmental delays, and the relentless emotional labor that often comes with raising autistic children. In this episode: 00:00 – The invisible workload of autism motherhood01:30 – Leaving a job because caregiving demands became too great03:00 – Grieving the motherhood journey you imagined05:15 – Living in constant fight-or-flight as an autism parent07:00 – Why autism caregiving never truly shuts off08:30 – Acceptance, therapy, and processing diagnosis grief10:45 – Wanting your child to “catch up” after diagnosis12:00 – Early intervention, ABA, and moving quickly after diagnosis13:30 – Learning your child’s body language and communication patterns15:00 – The daily realities of autism caregiving16:45 – School routines, therapies, and medical support18:00 – Home safety, elopement fears, and constant vigilance19:45 – Reading emotional cues from non-speaking children21:15 – Financial stress and caregiver burden22:45 – IEP advocacy and the power of parental intuition24:30 – Why autism moms deserve more support and understanding Listen to more episodes of the Inchstones Podcast, where Sarah Kernion shares caregiver stories, autism advocacy, profound autism experiences, and the realities of neurodivergent parenting.
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  Profound Autism and Letting Go of Expectations with Autism Mom, Alyssa Sieira 29.05.2026 22мин

  What happens when autism parenting becomes physically, emotionally, and mentally consuming? In this episode of Inchstones, Sarah Kernion sits down with Alyssa Sierra for a raw conversation about profound autism, aggressive behaviors, caregiver exhaustion, sibling dynamics, and the emotional process of letting go of expectations. Alyssa shares the story of her son Gabriel’s autism diagnosis during the pandemic and the moment motherhood shifted from “typical” parenting into a completely different reality. Together, Sarah and Alyssa discuss profound autism, parenting autistic children with severe behaviors, autism family support, caregiver burnout, and the invisible emotional labor autism moms carry every single day. The conversation explores: the grief of realizing your parenting path looks differentnavigating aggressive and self-injurious autism behaviorsraising neurotypical siblings alongside autistic childrenthe emotional complexity of discipline in neurodivergent homeswhy profound autism parenting feels different even within autism communitiesfinding joy and beauty inside developmental differences Sarah and Alyssa also talk openly about survival mode, motherhood identity, sensory overwhelm, and why releasing rigid expectations can create more peace for both parents and children. This episode is for autism moms, caregivers, and families navigating profound autism, developmental delays, severe behaviors, and the emotional complexity of raising neurodivergent children while trying to stay emotionally grounded themselves. Alyssa is a special needs mom to her beautiful 7-year-old son and also a mom to a neurotypical 2-year-old. Navigating both sides of parenting has its unique challenges, but it has also made her stronger, more compassionate, and deeply committed to advocacy. She is passionate about supporting families raising children with disabilities and believes every special needs family deserves the highest level of support from their state and government. Parenting a child with special needs comes with enough challenges; families should not have to fight to have their voices heard. Alyssa believes that every family's story matters and that sharing those stories is one of the most powerful ways to create understanding, change, and a better future for children with disabilities. In this episode: 00:00 – Profound autism and the reality of caregiving02:05 – Receiving an autism diagnosis during the pandemic03:10 – Tunnel vision after diagnosis and needing a plan05:00 – The grief of leaving “typical motherhood” behind06:45 – Explaining autism to friends and family07:30 – Aggressive behaviors and profound autism realities09:20 – Parenting autistic children and neurotypical siblings differently11:00 – The emotional complexity of discipline in autism parenting13:00 – Why autism parenting expands emotional perspective14:15 – Building community and finding supportive people16:00 – What autism moms say privately versus publicly17:10 – Finding joy inside neurodivergent parenting18:00 – Why autistic children experience wonder differently19:10 – Letting go of expectations in autism parenting21:00 – Learning to survive difficult behavioral seasons22:00 – Why positivity matters in caregiver burnout recovery Listen to more episodes of the Inchstones Podcast, an autism podcast sharing caregiver stories, profound autism realities, autism advocacy, and neurodivergent parenting.
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  Autism Grief, Expectations, and Letting Go | Shannon Korza 28.05.2026 25мин

  Autism parenting, caregiver stories, and neurodivergent parenting are at the heart of this episode of Inchstones as Sarah Kernion talks with Shannon Korza of Moms Talk Autism about grief, timelines, motherhood expectations, and parenting autistic children. In this deeply honest episode of Inchstones, Sarah sits down with Shannon Korza for a raw conversation about autism diagnosis grief, the pressure mothers place on themselves after diagnosis, and what it means to let go of the timelines society teaches us to chase. Shannon shares the emotional reality of receiving her daughter Gracie’s autism diagnosis after initially living in denial and fear that she would never be “enough” as a mother. Together, Sarah and Shannon explore autism parenting, caregiver burnout, sibling relationships, sensory differences, IEP goals, autism advocacy, and the deep grief that can surface when life no longer looks the way you imagined it would. The conversation also dives into the hidden emotional labor autism moms carry, the pain of watching autistic children struggle socially, and the shift that happens when parents stop forcing neurotypical expectations onto neurodivergent children. This episode is for autism moms, caregivers, and families navigating autism diagnosis journeys, parenting autistic children, disability advocacy, and the challenge of balancing hope with acceptance. In this episode: 00:00 – Autism parenting and motherhood expectations01:00 – Shannon’s reaction to her daughter’s autism diagnosis02:30 – Grieving the fear of not being “enough” as a parent03:45 – Parenting autistic children versus neurotypical siblings05:00 – Why grief and brokenness carry so much shame for mothers06:30 – Learning to sit with autism grief instead of avoiding it07:00 – The Christmas moment that changed Shannon’s perspective forever09:10 – Why autism parenting can still feel unfair years later10:00 – Autism is not a “superpower” conversation11:15 – Watching autistic children struggle socially13:40 – Sibling relationships and protecting autistic sisters16:00 – The emotional growth autism parenting can create18:00 – Sensory meltdowns and judgment from strangers19:00 – Celebrating tiny wins in autism parenting21:00 – Advice for parents receiving a new autism diagnosis22:00 – Letting go of developmental timelines and comparison24:00 – Creating IEP goals that actually fit your child and family Listen to more episodes of the Moms Talk Autism Podcast and follow Inchstones with Sarah Kernion, an autism podcast sharing caregiver stories, autism advocacy, profound autism, and neurodivergent parenting.
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  Autism, Marriage, and Surviving Caregiver Burnout | Tash Dillmon 27.05.2026 27мин

  Autism parenting, caregiver burnout, and caregiver stories are at the heart of this episode of Inchstones as Sarah Kernion talks with Tash Dillmon of Moms Talk Autism about grief, marriage, mental health, and parenting autistic children after profound loss. In this raw and deeply personal episode of Inchstones, Sarah sits down with Tash Dillmon for an honest conversation about autism parenting, surviving the loss of a child, navigating marriage through trauma, and the emotional realities many special needs caregivers silently carry. Tash shares the story of losing Jack’s twin brother, Jameson, during pregnancy and how grief shaped her experience as an autism mom from the very beginning. Together, Sarah and Tash discuss autism diagnosis journeys, caregiver burnout, maternal mental health, suicidal ideation, neurodivergent parenting, identity loss, and the pressure many mothers feel to keep moving no matter how much they are carrying internally. They also explore the power of partnership in marriage, the emotional depth autistic children often possess, and how parenting autistic children can radically transform the way families experience empathy, love, resilience, and presence. This episode is for autism moms, caregivers, and parents navigating profound grief, emotional exhaustion, disability advocacy, and the complexity of raising neurodivergent children while trying to hold themselves together. In this episode: 00:00 – Autism parenting and finding humor inside hard seasons01:20 – Receiving an autism diagnosis after the loss of a twin03:12 – Grief, therapies, and becoming a full-time autism caregiver05:00 – Losing your identity while parenting autistic children08:30 – Caregiver burnout and hitting emotional rock bottom09:00 – Suicidal ideation and maternal mental health in autism parenting11:45 – Childhood trauma, expectations, and emotional survival14:15 – Marriage, grief, and surviving profound loss together18:00 – How autism parenting transformed their relationship20:00 – Faith, healing, and rebuilding identity through motherhood21:30 – Why autism parenting can feel deeply unfair24:10 – The emotional depth and empathy of autistic children27:00 – How parenting autistic children changes the way you see humanity Listen to more episodes of the Moms Talk Autism Podcast and follow Inchstones with Sarah Kernion, an autism podcast sharing caregiver stories, autism advocacy, profound autism, and neurodivergent parenting.Tash Dillmon lives in the Portland, Oregon area with her husband, her two children, Jack, her neurospicy one, and Sloan, her typical one, and her rambunctious dog, Kiki. She is a solo parent most of the time while her husband is putting out fires in the next city over, #firewifelife! Everyone in the family loves being outside, hiking, kayaking, and enjoying nature. Tash loves to exercise, be in her yard, and volunteer in Children's Ministries at her local church. While she’s not being her kids' Uber driver, she loves a good murder documentary and is happiest watching her kids play sports.
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  Autism Parenting, Grief, and Finding Yourself Again with Jean Mayer of Moms Talk Autism 26.05.2026 30мин

  Autism parenting, caregiver stories, and neurodivergent parenting are at the heart of this episode of Inchstones. Sarah Kernion and Jean Mayer of Moms Talk Autism share a raw conversation about parenting autistic children, grief, identity, disability advocacy, and finding yourself again after diagnosis. In this deeply honest episode of Inchstones, Sarah sits down with Jean Mayer of Moms Talk Autism for a conversation about the hidden grief many autism parents carry, the loss of expectations, and the slow rebuilding that happens after your child’s diagnosis changes the life you imagined. Jean shares what it felt like to move through Rory’s autism diagnosis, give up the career and identity she once expected, and become the manager, advocate, and steady presence her child needed. Together, Sarah and Jean explore caregiver burnout, autism family support, emotional regulation, ableism, disability inclusion, and the reality of living in what Jean calls “the forever trench.” This episode is for every autism mom, special needs caregiver, and parent navigating neurodivergent parenting who has ever felt unseen, overwhelmed, or changed by the journey. It is a conversation about grief, yes, but also clarity, growth, advocacy, sisterhood, and the truth that joy and grief can coexist. In this episode: 00:00 – Why autism mom stories matter01:37 – Jean Mayer shares Rory’s autism diagnosis journey02:32 – The grief and identity shift after an autism diagnosis04:50 – How family systems shape disability expectations07:49 – The emotional energy of autism parenting10:53 – Giving up a career to become your child’s advocate11:28 – What feels unfair about raising an autistic child13:28 – Why autism parenting can feel like “a forever trench”18:05 – Talking honestly about autism grief without shame20:35 – Ableism, motherhood, and learning to see differently24:58 – Why disability belongs in every equity conversation30:11 – What Jean would tell a mom with a newly diagnosed child Listen to more episodes of the Moms Talk Autism Podcast and follow Inchstones with Sarah Kernion, an autism podcast sharing caregiver stories, autism advocacy, profound autism, and neurodivergent parenting. Jean Mayer is a dedicated school board trustee in Pflugerville ISD in Texas, where she serves as Chair of the Government Relations Committee, a role she has held for consecutive years. With a strong commitment to governance integrity, transparency, and student-centered policy, she works to ensure that district decisions reflect both fiscal responsibility and the diverse needs of the community. Jean also serves on the Board of the Autism Society of Texas and actively collaborates with disability advocacy organizations across the state to advance equitable and inclusive policies. In addition to her governance work, Jean is deeply engaged in family and systems-level advocacy. Through her work with Texas Parent to Parent, she provides medical training to first- and second-year medical residents, helping future physicians understand what it means to parent a child with complex needs through a trauma-informed lens. She is also a co-host of the Moms Talk Autism podcast, where she brings together professional insight and lived experience as the parent of a child with profound support needs. Across all of her work, Jean is committed to moving beyond awareness toward true inclusion, belonging, and meaningful systems change for individuals with disabilities and their families.