Stronger than Lipedema
Cindy Howell & Kristy Dellacroce
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Stronger Than Lipedema is a podcast dedicated to empowering women managing lipedema. Hosted by Cindy Howell and Kristy Dellacroce, it covers health, wellness, and self-care topics. Episodes offer practical tips, expert advice, and real-life stories to help reduce inflammation, boost energy, and build confidence. The show explores nutrition, movement, and mindset strategies tailored to lipedema challenges.
Епизоде
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Revolutionizing Lipedema Care: An interview with Dr. Volshteyn 20.09.2026 46минBuilding a Regional Lipedema Surgery Center: Dr. Volshteyn & Dr. Kaminsky on Techniques, Safety, and Comprehensive CareHosts Cindy and Kristy introduce board-certified plastic surgeons Dr. Volshteyn and Dr. Kaminsky about joining a growing hospital-based lipedema practice in central New Jersey. Dr. Volshteyn describes accidentally entering lipedema care after a persistent patient, learning high-volume liposuction, and evolving into a regional center as demand grew (now about 50% of the practice). Dr. Kaminsky shares becoming convinced after a Boston symposium and focuses on comprehensive, lymphatic-preserving, patient-specific care. They outline a consultation and insurance-authorization process, extensive pre-op screening (e.g., thyroid, iron, clotting, PCOS, mast cell activation), overnight hospital stays, and week-long local follow-up. Dr. Volshteyn explains liposuction methods (tumescent, power-assisted, water-assisted, VASER, and skin-tightening add-ons), emphasizes technique and safety, and discusses treating higher-BMI patients by improving function and pain to enable activity and weight loss.00:00 Welcome to the Podcast01:41 Meet DrVolshteyn02:24 Accidental Lipedema Discovery05:50 Building a Lipedema Center08:33 Meet Dr Kaminsky10:42 Why Care Is Fragmented14:05 Consultation and Insurance Steps21:17 Safety and Personalized Planning24:29 Liposuction Techniques Explained36:32 Training and Surgical Cautions38:59 BMI and High Risk Patients45:30 Closing and Part Two TeaseNot Sure What Your Next Step Should Be?You’ve learned a lot about lipedema—but knowing how to put it all together can feel overwhelming. If you’re wondering “What applies to me, and where do I start?”, the Lipedema Roadmap Session can help.In this private 60-minute Zoom session, we’ll look at where you are in your journey, identify your priorities, and create clear next steps for now, next, and later.Ready to put the pieces together?Book Your Lipedema Roadmap Session Here:https://l.bttr.to/cxLdlFollow us on Social media!!!Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN, CLT, MPHCWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBhttps://www.instagram.com/stronger_than_lipedema_podcast/Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.comLipedema Advocate 856-297-7437This episode is proudly sponsored by Carla Whorton, AGNP-BC, AAHPCarla treats Lipedema, hormones and weight optimizationWebsite:CarlaWhortonagnp.comhttps://www.instagram.com/carlawhortonnp/https://www.facebook.com/carla.whorton.npKaminskyhttps://www.atlanticsurgicalassociates.com/https://www.instagram.com/atlanticsurgicalassociateshttps://www.instagram.com/lipedema_md/ipedemamd.com/our-providers/dr-alexander-j-kaminsky/ -
Compression Tools for Lipedema with Juzo’s Caroline Pinney 13.09.2026 47минHosts Cindy and Kristy interview Caroline Pinney, Juzo’s National Education and Training Manager, about Juzo’s 100+ year history and compression options for lipedema. Caroline explains resting vs working pressure, why many lipedema patients need lower compression, and how compression can help prevent progression to lipolymphedema. She highlights Juzo Sensation (15–20 mmHg, micro-massage weave; biker short, capri, pantyhose) and when circular knit won’t work, recommending custom flat-knit options like Juzo Expert Cotton, plus adjustable Velcro wraps (Reversa Wrap). They discuss nighttime compression, Juzo’s Soft Compress padding, and insurance realities, including coverage under the Lymphedema Treatment Act for lymphedema diagnoses. Caroline advises checking USMCA manufacturers and proper sizing standards, and directs listeners to juzousa.com.00:00 Welcome to the Show01:41 Meet Caroline from Juzo02:24 Juzo Brand Story03:33 Compression Basics for Lipedema04:42 Juzo Sensation Overview07:32 Sizing and Getting the Right Fit09:01 When You Need Flat Knit Custom12:43 Wraps and the Compression Toolbox14:06 Post Surgery Compression Tips15:03 Nighttime Compression Explained18:44 Arms and Lipedema Progression20:28 Surgery Journeys and Choosing Surgeons24:15 Best Juzo Options for Lipedema25:16 Buyer Beware and Industry Standards26:35 Compression Quality Standards27:43 Spotting Bad Size Charts30:02 Comfort Drives Compliance32:37 Why Compression Matters34:40 Insurance And Prescriptions36:27 Lymphedema Treatment Act38:05 Advocacy And Future Codes41:11 New Juzo Products41:39 Find A Certified Fitter42:46 Community Events And Education45:50 Where To Learn More46:47 Episode Closing MessageNot Sure What Your Next Step Should Be?You’ve learned a lot about lipedema—but knowing how to put it all together can feel overwhelming. If you’re wondering “What applies to me, and where do I start?”, the Lipedema Roadmap Session can help.In this private 60-minute Zoom session, we’ll look at where you are in your journey, identify your priorities, and create clear next steps for now, next, and later.Ready to put the pieces together?Book Your Lipedema Roadmap Session Here:https://l.bttr.to/cxLdlFollow us on Social media!!!Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN, CLT, MPHCWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBhttps://www.instagram.com/stronger_than_lipedema_podcast/Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.comLipedema Advocate 856-297-7437This episode is proudly sponsored by Carla Whorton, AGNP-BC, AAHPCarla treats Lipedema, hormones and weight optimizationWebsite:CarlaWhortonagnp.comhttps://www.instagram.com/carlawhortonnp/https://www.facebook.com/carla.whorton.nphttps://juzousa.com/https://www.instagram.com/juzocompression/ -
Finding HOPE: A Conversation on Lipedema and Lymphatic Health 06.09.2026 54минPneumatic Compression Therapy for Lipedema: Lympha Press, Surgery Prep/Recovery, and Insurance NavigationCindy and Kristy introduce Stronger Than Lipedema and welcome Eric Ansart, president of Lympha Press, to discuss the company’s global mission and its HOPE framework (honor, optimize, people-first, empower). Eric explains pneumatic compression therapy as a home-use system that sequentially inflates a multi-chamber garment to mimic and augment PT/OT treatment, supporting self-management between therapy visits. They cover why it can help lipedema patients, including calming circumferential compression, edema reduction, pain relief, and improved mobility, referencing LymphaPress research such as a Get Up and Go study in stage two lipedema and findings on fat cell size reduction. The conversation also addresses optimizing outcomes before and after lipedema surgery, timing for post-op use per clinician guidance, and navigating coverage, often requiring documented conservative care over 28 days, typically with PT/OT, plus options for uninsured patients, appeals, and Lympha Press hardship support and monthly roundtables.00:00 Welcome to the Podcast01:41 Meet Eric Ansart03:23 Lymphapress Mission HOPE06:26 What Is Pneumatic Compression08:14 Benefits for Lipedema15:12 Making Therapy a Habit21:14 Preparing for Surgery26:07 Spreading Awareness28:38 Lipedema as a Syndrome29:31 Knowledge Is Power30:24 Post Surgery Benefits33:18 When To Start Pumping34:49 New Gear And Gadgets35:49 Insurance Coverage Roadmap41:23 No Insurance Options44:21 Appeals And Self Advocacy48:28 LymphaPress Resources52:36 Roundtable Schedule54:02 Final Episode WrapNot Sure What Your Next Step Should Be?You’ve learned a lot about lipedema—but knowing how to put it all together can feel overwhelming. If you’re wondering “What applies to me, and where do I start?”, the Lipedema Roadmap Session can help.In this private 60-minute Zoom session, we’ll look at where you are in your journey, identify your priorities, and create clear next steps for now, next, and later.Ready to put the pieces together?Book Your Lipedema Roadmap Session Here:https://l.bttr.to/cxLdlFollow us on Social media!!!Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN, CLT, MPHCWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBhttps://www.instagram.com/stronger_than_lipedema_podcast/Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.comLipedema Advocate 856-297-7437This episode is proudly sponsored by Carla Whorton, AGNP-BC, AAHPCarla treats Lipedema, hormones and weight optimizationWebsite:CarlaWhortonagnp.comhttps://www.instagram.com/carlawhortonnp/https://www.facebook.com/carla.whorton.nphttps://linktr.ee/LymphaPresshttps://www.facebook.com/LymphaPressUSAhttps://www.instagram.com/lympha_presshttps://www.lymphapress.com/ -
Empowerment through Acceptance: Carmen on Lipedema 30.08.2026 52минBody Acceptance, Advocacy, and Living Fully with Lipedema: Carmen’s JourneyHosts Cindy and Kristy welcome Carmen, a content creator focused on body acceptance, to discuss living with both lymphedema (diagnosed at age five or six) and lipedema (officially diagnosed around age 30 after a lymphatic drainage therapist’s concerns). Carmen shares how hearing “it’s not your fault” was powerful, describes managing swelling, pain, heat and humidity challenges, and her dislike of compression despite using it for travel and long days. She explains building her platform (started in 2017), handling hate comments, and the message behind “Eat the Cake Too”: refusing to shrink life because of body size or condition. The conversation covers advocacy with friends and doctors, breaking cycles of negative body talk for young girls, body acceptance vs body positivity, mixed feelings about surgery outcomes, and warnings against taking medical advice or GLP-1/peptide promotions from influencers.00:00 Welcome to the Podcast01:42 Meet Carmen02:40 Diagnosis Journey05:09 Lipedema vs Lymphedema07:11 Compression and Climate08:51 Starting Instagram09:26 Handling Online Hate11:12 Eat the Cake Too14:42 Social Media and Body Image17:18 Breaking the Cycle18:41 Rewiring Self Talk22:50 Acceptance vs Positivity24:24 Social and Mental Impact25:54 Living With Leg Elevation27:12 Advocacy And Boundaries29:36 Surgery Fears With Lymphedema31:14 Post Surgery Body Acceptance37:10 Summit Pressure And Options37:49 Micro Lymphatic Repair Explained42:01 Beyond Before And After46:17 Stop Taking Influencer Medical Advice49:35 Closing Thoughts And Wrap UpNot Sure What Your Next Step Should Be?You’ve learned a lot about lipedema—but knowing how to put it all together can feel overwhelming. If you’re wondering “What applies to me, and where do I start?”, the Lipedema Roadmap Session can help.In this private 60-minute Zoom session, we’ll look at where you are in your journey, identify your priorities, and create clear next steps for now, next, and later.Ready to put the pieces together?Book Your Lipedema Roadmap Session Here:https://l.bttr.to/cxLdlFollow us on Social media!!!Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN, CLT, MPHCWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBhttps://www.instagram.com/stronger_than_lipedema_podcast/Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.comLipedema Advocate 856-297-7437This episode is proudly sponsored by Carla Whorton, AGNP-BC, AAHPCarla treats Lipedema, hormones and weight optimizationWebsite:CarlaWhortonagnp.comhttps://www.instagram.com/carlawhortonnp/https://www.facebook.com/carla.whorton.np -
Lipedema Arm Surgery & International Care in Cyprus with Dr. Georgiou (Dr. G) 23.08.2026 58минCindy and Kristy introduce sit down with Dr. Georgiou (“Dr. G”), a Cypriot plastic and reconstructive surgeon trained in Germany under Prof. Gotz, now directing plastic surgery at the German Medical Institute in Cyprus with a major focus on lipedema reduction surgery for international patients. Dr. G discusses limited lipedema education in medical training, balancing functional and aesthetic outcomes, differences between early- and late-stage techniques, and why arms are typically easier than legs. He outlines consultation steps for travelers, lymph-sparing wet/super-wet methods, use of power-assisted liposuction with selective VASER, compression and MLD logistics, skin retraction vs lifts, typical hospital stay, follow-up timing, and travel/insurance considerations.00:00 Welcome to the Show01:41 Meet Dr Georgiou03:54 Why Lipedema Surgery06:42 Lymphatics and Technique10:46 Arms Versus Legs14:24 Ballooning and Triggers18:47 International Consult Process21:55 Liposuction Methods Explained27:37 Loose Skin and Tightening33:04 Lifts Scars and Timing35:01 Lifts Versus Lipo Timing37:08 Vetting Surgeons Together39:13 Sun Safety Before Surgery40:29 Surgery Day Walkthrough41:17 Anxiety And Meds45:05 Hospital Stay Timeline46:14 Compression And MLD Plan49:40 Driving And Clinic Visits50:38 Followups And Travel Insurance54:05 Lodging Supplies And Food56:36 Practice Philosophy And WrapupNot Sure What Your Next Step Should Be?You’ve learned a lot about lipedema, but knowing how to put it all together can feel overwhelming. If you’re wondering “What applies to me, and where do I start?”, the Lipedema Roadmap Session can help.In this private 60-minute Zoom session, we’ll look at where you are in your journey, identify your priorities, and create clear next steps for now, next, and later.Ready to put the pieces together?Book Your Lipedema Roadmap Session Here:https://l.bttr.to/cxLdlFollow us on Social media!!!Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN, CLT, MPHCWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBhttps://www.instagram.com/stronger_than_lipedema_podcast/Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.comLipedema Advocate 856-297-7437Book sound healing and breathwork sessions with Kristy on her website: http://www.dellalunawellness.com/This episode is proudly sponsored by Carla Whorton, AGNP-BC, AAHPCarla treats Lipedema, hormones and weight optimizationWebsite:CarlaWhortonagnp.comhttps://www.instagram.com/carlawhortonnp/https://www.facebook.com/carla.whorton.nphttps://www.driakovosgeorgiou.com/https://www.instagram.com/driakovosgeorgiou/Email: [email protected] -
Body Liberation, Lipedema, and Breaking Free from Diet Culture with Paula Atkinson 16.08.2026 53минCindy welcomes Paula Dee Atkinson, a body liberation psychotherapist and yoga teacher specializing in body image, trauma, and eating disorders, who has worked with many clients diagnosed with lipedema. Paula discusses fatphobia, diet culture, and “thin worship” as systems tied to power and money, describing her George Washington University course “Weight and Society,” which she transformed into a social justice class exploring health definitions and the history of fat liberation. They talk about the difficulty and validation of diagnosis, the impact of social media and curating feeds, connections between stress, trauma, and chronic illness, rejecting “emotional eating” as a shame-based concept, and focusing on how foods make the body feel. Paula’s closing advice is to remember your body is on your side and not to abandon it.00:00 Welcome to the Podcast01:42 Meet Paula Atkinson04:12 Fatphobia and Power05:58 Weight and Society Course08:06 Who Took the Class11:24 Lipedema Clients and Diagnosis17:10 What Body Image Means21:17 Diet Culture and Control24:37 Social Media as a Tool28:05 Stress Trauma Connection29:39 Sick Care Reality Check31:46 Better Doctors Today33:31 Surgery And Aesthetics35:09 Body Autonomy Freedom37:38 Diet Culture Scam43:29 Emotional Eating Myth46:44 Food Without Morality50:32 Befriend Your Body53:05 Episode Wrap UpFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN, CLT, MPHCWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBhttps://www.instagram.com/stronger_than_lipedema_podcast/This episode is proudly sponsored by Carla Whorton, AGNP-BC, AAHPCarla treats Lipedema, hormones and weight optimizationWebsite:CarlaWhortonagnp.comhttps://www.instagram.com/carlawhortonnp/https://www.facebook.com/carla.whorton.npPaul AtkinsonInsta: @pauladatkinsonWebsite: https://www.pauladatkinson.com/FB: https://www.facebook.com/pauladatkinson/TikTok: @pauladatkinson5YouTube: https://www.youtube.com/@WINWWYEpisode of Surrounded: https://youtu.be/M7K87rGoGps?si=KPjMLmxc4KPfp0nJ -
Fascia, Advocacy, and Block Therapy: Kelly Maynard’s Lipedema Journey 09.08.2026 1ч 6минHost Cindy welcomes Kelly Maynard of Wild Heart Wellness, who shares her long journey to recognizing lipedema after her fourth child at 43 and years of worsening pain that left her mostly bedridden, impacting her family and mental health. She describes learning about lipedema through a well-known community figure, challenges getting a formal diagnosis due to limited local providers, and the idea that diagnosis is most necessary for insurance coverage or surgery. The conversation emphasizes self-advocacy, frustrations with dismissive doctors, ordering labs independently, and questioning “normal” lab ranges. Kelly explains how fascia-focused approaches, especially block therapy using breathwork and sustained pressure to melt adhesions, helped reduce her pain, improve tissue texture, circulation, lymph flow, sweating, swelling, body shape, and overall functioning, and she shares where to find her online.00:00 Welcome to the Show01:41 Meet Kelly Maynard02:37 Painful Turning Point03:48 Searching for Answers05:33 Finding Lipedema Clues06:56 Do You Need Diagnosis11:11 Surgery Versus Conservative Care12:05 Hormones and Late Pregnancy14:43 Bedridden and Hopelessness19:36 Firing Bad Doctors28:55 Ordering Your Own Labs33:46 Advocating With Doctors35:51 Experts Money And Codes38:12 Homeschooling To Fascia38:34 Block Therapy Basics42:12 Detox Reactions Explained45:50 Adhesions And Tissue Change48:38 Pain Circulation Sweating Wins50:09 Weight Inflammation And Shape52:56 Body Image And Shame01:01:05 Daughter Spots Symptoms01:04:43 Where To Find HerFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN, CLT, MPHCWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBhttps://www.instagram.com/stronger_than_lipedema_podcast/This episode is proudly sponsored by Carla Whorton, AGNP-BC, AAHPCarla treats Lipedema, hormones and weight optimizationWebsite:CarlaWhortonagnp.comhttps://www.instagram.com/carlawhortonnp/https://www.facebook.com/carla.whorton.npGuest Kelly MaynardLearn More: https://www.wildheart.health/Have Questions? [email protected] Facebook: https://www.facebook.com/wildheartlipedema/ Instagram: https://www.instagram.com/wildheartwellnessgirl/Youtube: https://www.youtube.com/@wildheartwellnessgirlBlock Therapy Sampler Program: https://kd167.isrefer.com/go/sampler/KellyMaynard/ Block Therapy Starter Kit: https://kd167.isrefer.com/go/starterprogram/KellyMaynard/Fascia Freebie: https://kd167.isrefer.com/go/5stepscontrolpain/KellyMaynard/ -
Part 2 with Wendy Moore on Connective Truth: Reaching Young Women With Lipedema Awareness 02.08.2026 38минConnective Truth: Expanding Lipedema Awareness and Access for Young WomenHost Cindy welcomes back guest Wendy Moore of the new nonprofit Connective Truth, who shares that she had lipedema since childhood and went about 30 years without a diagnosis before self-diagnosing in 2024. Wendy explains her current focus on reaching young women especially those without access to social media, routine pediatric care, or resources by learning from caregivers, school nurses, and community leaders about what tools would help most. She discusses addressing bias and misinformation, exploring outreach beyond healthcare (including youth-focused programs like Dove/Nike’s Body Confidence Sport), and funding practical resources such as textbooks and potential short educational films through a family foundation. The conversation also covers barriers to screening and “next steps” for youth, the importance of broad health education, and how the ICD-10 code provides validation and may drive future progress. Wendy invites listeners to email ideas and needs to [email protected]:00 Welcome to the Show01:42 Meet Wendy Moore03:36 What Is Connective Truth04:43 Reaching Girls Offline08:16 Screening and Next Steps12:32 Beyond Healthcare Awareness15:51 Bias and Youth Advocacy17:04 Nonprofit Funding and Tools19:56 Underserved Communities Focus22:56 Early Education for Everyone27:51 How You Can Help33:11 ICD-10 Code Validation37:07 Final Thanks and Wrap UpFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN, CLT, MPHCWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBhttps://www.instagram.com/stronger_than_lipedema_podcast/This episode is proudly sponsored by Carla Whorton, AGNP, AAHPWebsite:CarlaWhortonagnp.comhttps://www.instagram.com/carlawhortonnp/https://www.facebook.com/carla.whorton.npLearn more www.connectivetruth.orgFollow us https://www.instagram.com/connectivetruth/)https://www.linkedin.com/company/connective-truth/Get in touch:Email: [email protected] https://connectivetruth.org/faqIntroduce us to a school nurse: www.connectivetruth.org/truth-seekSign our open letters www.connectivetruth.org/you-can-handle-the-truthDisrupt bias with us www.connectivetruth.org/corrective-truth -
The Voice of Truth: Wendy Moore and Lipedema Awareness 26.07.2026 1ч 2минWendy Moore on Connective Truth, Diagnosis Barriers, and Reaching Young Women With LipedemaHost Cindy and interview Wendy Moore, founder of the nonprofit Connective Truth, who has had lipedema since childhood but didn’t recognize it until her early 40s after seeing stories on social media. Wendy describes the identity shift and relief of finding community, the grief of “losing” 30 years to misdiagnosis and gaslighting, and her resolve to prevent young women from experiencing the same delays. She explains her background building low-overhead, direct-impact projects and how that led to focusing on access to reliable information amid misinformation and AI-driven marketing. The conversation covers ICD-10 lipedema codes arriving in October 2026, ongoing insurance and provider barriers, the need for pediatric and school-based screening, and the mental health impacts of identity formation and learned helplessness. Wendy shares her diagnosis path (clinical opinion at Lymphedema Alliance of NY, virtual diagnosis with Dr. Aria/Roxbury Institute, and a separate visit with Dr. Herbst), her 2024 Roxbury surgeries and recovery, and invites listeners to connectivetruth.org and @connectivetruth.00:00 Welcome to the Show01:42 Meet Wendy Moore02:34 Finding the Diagnosis03:37 Identity Shift and Community06:34 Gaslighting and Body Struggles09:31 Building Nonprofits with Impact12:38 Connective Truth Mission13:25 Social Media and Access15:40 ICD-10 Codes and Insurance21:01 Early Detection for Girls22:46 Schools and Underserved Access27:40 Citizen Science and Research Gaps29:49 Body Image and Wellness Myths33:05 Mental Health and Emotional Toll33:48 Identity and Helplessness36:01 Reaching Young Women39:06 Awareness Versus Access39:49 Self Diagnosis Journey41:57 Virtual Consult Questions44:50 Finding Local Care Paths46:11 Zoning and Licensing Barriers50:22 MLD Training Misconceptions51:50 Surgery Timeline and Recovery53:03 Insurance Coverage Reality56:30 Beyond Surgery Long Term Care01:00:40 Mental Health and ClosingFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN, CLT, MPHCWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBhttps://www.instagram.com/stronger_than_lipedema_podcast/This episode is proudly sponsored by Lipoelastic CompressionDon’t forget to check out Lipoelastic and use code STLpodcast for 10% off your next order.https://www.instagram.com/lipoelastic_usa/https://www.instagram.com/lipoelastic/Learn more about Wendy Moore here!Learn more www.connectivetruth.orgFollow us @connectivetruth (Instagram, LinkedIn)Get in touch: [email protected] https://connectivetruth.org/faqIntroduce us to a school nurse www.connectivetruth.org/truth-seekSign our open letters www.connectivetruth.org/you-can-handle-the-truthDisrupt bias with us www.connectivetruth.org/corrective-truth -
Lipedema, MS, and Venous Insufficiency: Katie Tarr's Journey from PT to Patient Advocate 19.07.2026 49минHost Cindy interviews Katie Tarr, a retired physical therapist, mom from Wilmington, North Carolina, and content creator living with lipedema, multiple sclerosis, and chronic venous insufficiency. Katie shares noticing her tissue felt different in PT school, years of unexplained leg heaviness, a compartment syndrome diagnosis and fasciotomy, later an MS diagnosis, and persistent weight-loss resistance that led her to discover lipedema via ChatGPT, then confirm it through social media and specialists. The conversation covers lipedema removal surgery findings of severe fibrosis, venous ablation procedures and expectations, challenges distinguishing MS vs lipedema symptoms, and how an anti-inflammatory, holistic approach supports both conditions. Katie explains navigating diagnosis through specialists, MLD therapy, and finding providers willing to learn, and discusses building community support and practical advice like habit stacking and avoiding comparison.00:00 Welcome to the Show01:39 Meet Katie Tarr02:57 Noticing Something Different05:14 Diagnosis Journey08:01 Surgery and Fibrosis10:35 Vein Treatments Explained13:43 Results and Surgery Timing19:44 Choosing Surgeons and Care21:21 MS and Lipedema Overlap24:13 Getting Diagnosed Strategically25:01 Misdiagnosed for MLD Access25:59 Finding Providers Who Listen26:45 Virtual Consult Options30:20 Conservative Care First33:50 Insurance Appeals Strategy35:15 Clinician Becomes Patient37:21 Building Online Community41:59 Toxic Comparisons Online44:49 Habit Stacking Self Care48:17 Episode Wrap UpFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN, CLT, MPHCWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBhttps://www.instagram.com/stronger_than_lipedema_podcast/This episode is proudly sponsored by Lipoelastic CompressionDon’t forget to check out Lipoelastic and use code STLpodcast for 10% off your next order.https://www.instagram.com/lipoelastic_usa/https://www.instagram.com/lipoelastic/[email protected]/healwithkatietarr -
Liposuction Expertise: Dr. Thomas Su's Approach 12.07.2026 51минDr. Thomas Su on Awake 360° Lipedema Liposuction, Staging, Recovery, and Insurance ChallengesHosts Cindy and Kristy introduce Dr. Thomas Su of Art Lipo in Tampa. Dr. Su describes training in internal medicine, a fine arts background, and 20 years specializing in circumferential, high-definition arm and leg liposuction, evolving from cosmetic work to lipedema cases starting around 2017. He explains why he prefers awake, office-based procedures using local anesthetic and nitrous oxide, notes lipedema “staging” reflects size more than symptom severity, and outlines how larger cases may require multiple surgeries or hospital-based large-volume surgeons. He details his photo-based consult process with hand-drawn visual “renders,” typical recovery marked by swelling for months, a ~3-month minimum between blended leg procedures, two-week minimum compression (provided by his office), selective use of MLD for severe swelling, and ongoing insurance denial tactics despite pending coding changes.00:00 Show Introduction00:55 Sponsor Message01:42 Meet Dr Thomas Su03:49 Training And Credentials06:46 Circumferential Technique07:42 Stages And Case Limits13:42 Awake Office Surgery16:32 Why Lipedema Work20:50 Loose Skin Challenges22:26 Complete Removal Skills25:43 Consultation Process26:25 Visualizing New Shape28:44 Surgery Staging Strategy30:52 Insurance Coverage Reality37:44 Recovery and Swelling40:08 Timing Between Procedures42:10 Compression Guidelines47:28 MLD and Fibrosis Debate50:03 Advice and FarewellFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN, CLT, MPHCWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBhttps://www.instagram.com/stronger_than_lipedema_podcast/This episode is proudly sponsored by Lipoelastic CompressionDon’t forget to check out Lipoelastic and use code STLpodcast for 10% off your next order.https://www.instagram.com/lipoelastic_usa/https://www.instagram.com/lipoelastic/https://artlipo.com/https://www.instagram.com/artlipo_lipedema_surgery/https://www.facebook.com/ArtLipoLipedemaSurgery/https://www.tiktok.com/@artlipo_lipedema_surgeryhttps://www.youtube.com/channel/UCNh7wlWroshm5vVwbWNfExQ -
Breaking Down Barriers: Conversations on Lipedema with Dr. Francois" 05.07.2026 59минLipedema, Vascular Health, and Women’s Advocacy with Dr. Czestochowa FrancoisHost Cindy welcomes Dr. Czestochowa Francois, an emergency and vascular medicine physician, to discuss her path into lymphatic and venous medicine and her personal connection to lipedema through a family member. The conversation highlights how lipedema is often underdiagnosed or misattributed to obesity, aging, menopause, or diagnoses like fibromyalgia, and stresses the importance of clinicians learning alongside patients rather than dismissing them. They discuss comorbidities and evolving medical knowledge, the challenges of accessing care and creating documentation “paper trails” for treatment, and the expense of managing lipedema. Cindy shares frustrations navigating BHRT and feeling unheard, while Dr. Francois emphasizes whole-body interconnected systems, the need for supportive provider relationships, and patient self-advocacy. She closes with a message that symptoms are real, stress can worsen conditions, and community support and kindness to one’s body matter.00:00 Welcome to the Podcast01:39 Meet Dr Francois02:56 Personal Link to Lipedema03:54 Comorbidities and New Frontiers06:25 Gaslighting and Finding Care08:05 Triggers and Misdiagnosis11:32 Women’s Health Funding Gap14:01 BHRT and Screening Dilemmas20:38 Choosing the Right Provider25:56 Why Vascular Medicine30:56 Seeing More Lipedema Patients31:25 Training Through Experience32:09 Building a Care Village32:52 Access Gaps and CLT34:06 Community and Research Push36:06 Paper Trails for Coverage38:04 Clinical Diagnosis Basics38:28 Whole Body Systems43:40 Kindness After Pregnancy48:23 Women Supporting Women50:32 Listening for Hidden Symptoms53:45 Finding the Right Doctor55:49 Where to Find Care56:51 Physician Message to Women58:45 Episode Wrap and Next StepsFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN, CLT, MPHCWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBhttps://www.instagram.com/stronger_than_lipedema_podcast/This episode is proudly sponsored by Lipoelastic CompressionDon’t forget to check out Lipoelastic and use code STLpodcast for 10% off your next order.https://www.instagram.com/lipoelastic_usa/https://www.instagram.com/lipoelastic/ -
Beyond the Diagnosis: Dr. Nicole Kramer’s Story 28.06.2026 53минDr. Nicole Kramer on 33 Years of Misdiagnosis, Medical Gaslighting, and Finding Answers with LipedemaHosts Cindy andKristy welcome Dr. Nicole Kramer, a clinical psychologist and “fellow lippy lady” diagnosed with stage 3 lipedema at 43 after decades of misdiagnosis and dismissal, despite being seen at major medical centers. She shares early signs in childhood, progression during hormonal shifts and stress, and how a community hospital lymphedema clinic director finally identified her textbook lipedema, later confirmed by Dr. Herbst. The conversation covers medical uncertainty, obesity stigma, systemic pressures that reward physician certainty, and how the lack of U.S. ICD-11 adoption and billing codes contributes to poor recognition and insurance barriers. Dr. Kramer discusses treating the experience as trauma, the importance of advocacy and community, and her lipedema reduction surgeries with Dr. Volshteyn (legs and arms, with another upcoming), pursued largely due to declining mobility. She also shares her Substack, Beyond Zebras, focused on navigating misunderstood conditions.00:00 Welcome to the Podcast00:55 Sponsor Message01:42 Meet Dr Nicole Kramer03:23 Her Lipedema Journey06:57 Dismissed by Experts08:59 Accident and Rehab10:53 Finally Diagnosed13:58 Why Doctors Miss It16:10 ICD Codes and Coverage18:16 Beyond Zebras Framework21:50 Seeing Lipedema Everywhere23:48 Medical Gaslighting Impact25:59 Doctor Culture and Certainty28:00 Doctors Under Pressure30:30 Sick Care Reality Check31:22 Diagnosis Doubt and Gaslighting33:21 Trauma and Coping Tools38:16 Lipedema Surgery Journey40:35 Insurance and Access Barriers43:13 Mobility and Legal Advocacy45:18 Teaching Providers and Power Dynamics49:19 Hormones and Women's Health Gaps51:18 Where to Connect Next52:28 Final Episode Wrap Follow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN, CLT, MPHCWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBhttps://www.instagram.com/stronger_than_lipedema_podcast/This episode is proudly sponsored by Lipoelastic CompressionDon’t forget to check out Lipoelastic and use code STLpodcast for 10% off your next order.https://www.instagram.com/lipoelastic_usa/https://www.instagram.com/lipoelastic/Dr Kramer's main outlet is on Substack: https://beyondzebras.substack.com/https://www.instagram.com/drnicolekramer/ -
Lisa Duerre on Workplace Advocacy, and Navigating Lipedema Care 21.06.2026 57минHosts Cindy and Kristy, welcome guest Lisa Duerre, a CEO of RLD Group a leadership alignment consulting firm, and lipedema advocate. Lisa shares being late-diagnosed in 2022 after losing mobility and using a scooter, learning about lipedema from her stepmom’s research, and rebuilding her health through conservative therapies, including swimming and wheelchair assistance during airport travel. She discusses advocating through storytelling rather than directly labeling others, the benefits and risks of social media, and frustrations with limited access to CLT/CDT/MLD care, long waitlists, and out-of-pocket costs. Lisa recounts a planned Germany surgery canceled due to anesthesia safety concerns tied to BMI and cardio capacity, prompting weight loss and a reassessment of surgery. She emphasizes small actions, community support, requesting help, workplace accommodations, anti-fat bias resources (NAAFA, Aubrey Gordon), and notes research citing a high correlation between lipedema and ADHD.00:00 Welcome to the Show01:39 Meet Lisa Duerre03:09 Late Diagnosis and Mobility05:00 Stepmom Sparks Discovery06:40 How to Tell Others10:57 Social Media and Scams14:02 Surgery Plans Canceled17:34 Getting Diagnosed Locally20:43 Finding MLD and CDT Care24:43 Small Steps and Resilience27:57 Asking Family for Help32:04 Knee Pain Misdiagnosis33:24 Caregiver Perspective Shift34:58 Advocating Travel Needs37:24 Accessibility In Seating41:14 Airline Policies And Bias43:09 Anti Fat Bias Resources45:34 Community And Burnout47:39 Finding Gifts In Diagnosis50:51 ADHD Link And Superpower54:36 Closing And Where To Find Lisa56:18 Episode Wrap UpFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN, CLT, MPHCWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBhttps://www.instagram.com/stronger_than_lipedema_podcast/This episode is proudly sponsored by Lipoelastic CompressionDon’t forget to check out Lipoelastic and use code STLpodcast for 10% off your next order.https://www.instagram.com/lipoelastic_usa/https://www.instagram.com/lipoelastic/LinkedIn: https://www.linkedin.com/in/lisaduerre/YouTube: https://www.youtube.com/@realtalkwithlisaSpeaking Page: https://www.lisaduerre.com/lipedema-advocacy/RLD Group: https://rldgroupllc.com/Instagram: https://www.instagram.com/lisa.duerre/Facebook: https://www.facebook.com/lisa.duerre -
Carmen from Monarch continuing education: insights into lymphatic health 14.06.2026 43минUnderstanding the Lymphatic System, MLD, and Early Lipedema Support with Carmen of Monarch Continuing EducationHosts Cindy and Kristy welcome Carmen, director and owner of Monarch Continuing Education, who shares her background in physical therapy and massage therapy and how discovering manual lymph drainage (MLD) led her to become a certified lymphedema therapist and eventually create accredited training programs to expand access to care, especially in rural areas.Carmen explains why lymphatic education isn’t mainstream, gives a simple overview of the lymphatic system’s role in moving and filtering interstitial fluid, and discusses signs of lymphatic issues and early lipedema indicators. She recommends practical ways to support lymphatic health, emphasizing movement, reducing toxins, and tracking habits and symptoms. Carmen clarifies why MLD is light yet effective, its role in maintenance, and shares a multigenerational lipedema case highlighting early intervention benefits. She also provides resources at monarchce.com.00:00 Welcome to the Show00:55 Sponsor Message01:42 Meet Carmen02:02 From Clinician to Educator06:04 Why Lymphatics Are Overlooked10:47 Lymphatic System Explained15:03 Signs of Lymphatic Trouble18:10 Simple At Home Support20:53 Tracking Habits and Symptoms25:34 Manual Lymph Drainage Basics29:42 MLD for Wellness and Fitness34:37 Three Generation Lipedema Story39:59 Resources and Where to Find Carmen41:07 Conference Talk and Progress42:20 Final Thoughts and GoodbyeFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN, CLT, MPHCWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBPodcast IG:https://www.instagram.com/stronger_than_lipedema_podcast/This episode is proudly sponsored by Lipoelastic CompressionDon’t forget to check out Lipoelastic and use code STLpodcast for 10% off your next order.https://www.instagram.com/lipoelastic_usa/https://www.instagram.com/lipoelastic/Monarch Continuing Education: https://www.monarchce.com/Email: [email protected]://www.facebook.com/MonarchCE/ -
Exploring Innovations in Healthcare with Dr. Grace Villaver 07.06.2026 46минCindy and Kristy welcome Dr. Grace Villaver from Levelupptdoc.com7:45 — Lipedema fat is metabolically different and causes inflammation, muscle inhibition, and joint damage beyond just added weight. Even small amounts of joint swelling can significantly reduce muscle recruitment.8:54 — Lipedema fat is metabolically distinct and creates a different kind of inflammation in the body.16:24 — Custom compression garments are more effective and improve compliance — especially for patients with asymmetrical body shapes or sensitivity.31:59 — Surgery is a valid option for many women — but vetting surgeons and having realistic expectations (including the possibility of deeper nodules becoming more visible post-surgery) is critical.43:15 — CDT (Complete Decongestive Therapy) is the gold standard for lipedema management and includes MLD, compression, exercise prescription, and skincare.44:52 — Your body is not failing you — it has been failed by a system that wasn't built to understand it.Connect with Dr. Grace Villaver:Website: levelupptdoc.comEmail: [email protected]: Leesburg, Northern Virginiahttps://www.instagram.com/levelup.therapy/Sponsor:This episode is sponsored by Lipoelastic — compression garments designed specifically for patient comfort and support. Use code STLpodcast for 10% off your order. Link in show notes. -
Kasi Grosvenor: Insights on Lipedema Awareness Month Lipedema Awareness Month’s focus on "lipedema literacy" 31.05.2026 1ч 3минLipedema Literacy, Surgery Realities, and Trusted Resources with Kasi GrosvenorHosts Cindy and Kristy welcome back Kasi Grosvenor, a project manager at the Lipedema Foundation, to discuss her lipedema journey, the way pain and functional limitations can be normalized, and how functional capacity evaluations may reveal hidden impacts—especially when conducted by clinicians familiar with lipedema.Kasi shares that she was diagnosed about five years ago (stage 2–3), has used conservative therapies since diagnosis, and has undergone five removal-related procedures (including brachioplasty, abdominoplasty, and low-volume liposuction), emphasizing surgery as a reset—not a cure—requiring ongoing daily management. The conversation covers comorbidities (including mast cell activation syndrome, hereditary alpha-tryptasemia, hypermobility, perimenopause), the slow progress toward ICD coding, and Lipedema Awareness Month’s focus on “lipedema literacy,” urging patients to seek vetted resources like lipedema.org, provider directories, print brochures, and the Legato Library.00:00 Welcome to the Podcast00:55 Sponsor Message01:42 Meet Casey Grosvenor02:34 Kasi’s Diagnosis Story04:35 Normalizing Pain and Limits05:30 Functional Capacity Testing10:12 Finding the Right PT or OT14:43 Life After Five Surgeries17:32 What Areas Were Treated19:08 Regrowth and Fibrosis Tools23:14 Habit Stacking at Home26:08 Comorbidities and Connections30:10 Hypermobility and Early Signs31:34 Aging With EDS Challenges32:43 Grassroots Awareness Materials34:44 Billboards And Viral Moments36:27 ICD Codes And Policy Progress41:58 Patient And Foundation Perspective44:26 Awareness Month Literacy Push47:04 Elevator Pitch For Lipedema49:41 Obesity Bias In Healthcare52:49 Trusted Resources And LegatoFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN, CLT, MPHCWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBThis episode is proudly sponsored by Lipoelastic CompressionDon’t forget to check out Lipoelastic and use code STLpodcast for 10% off your next order.https://www.instagram.com/lipoelastic_usa/https://www.instagram.com/lipoelastic/Lipedema Foundation Website: https://www.lipedema.orgAccess Lipedema Awareness Month Resources: https://www.lipedema.org/lipedema-awareness-month-2026Join the Lipedema Foundation Newsletter: https://lipedema.org/contact-us Educational Resources: https://www.lipedema.org/educational-resourcesFollow Lipedema Foundation on Social Media: Facebook, LinkedIn, Instagram, X, TikTok, and YouTubeExplore the Lipedema Research Library (LEGATO): https://www.lipedema.org/libraryAccess Treatments Resources: https://www.lipedema.org/treatmentsFind a Lipedema Provider: https://www.lipedema.org/provider-directory Kasi Grosvenorhttps://www.instagram.com/kasi.grosvenor/ -
Nutrition, the Lymphatic System, and Lipedema: Evidence-Based Strategies with Dietitian Jean LaMantia 24.05.2026 51минCindy welcomes registered dietitian Jean LaMantia, a Canada- and US-registered practitioner, cancer survivor, and author, to discuss lipedema, lymphedema, and nutrition. Jean shares how a lymphoma diagnosis at 27 led her to focus on the lymphatic system and later work with lymphedema and lipedema clients. She highlights her books on cancer nutrition, lymphedema (with a therapist co-author), intermittent fasting, and complementary therapies, plus lipedema self-care journals. The conversation emphasizes evidence-based guidance amid nutrition misinformation, tracking symptoms to identify triggers, and focusing on “non-scale victories” like pain and function rather than weight loss. Jean explains gut-lymph connections, notes frequent IBS-like symptoms, and recommends anti-inflammatory eating tailored to the individual. Listeners can find resources and a free consult at JeanLamantia.com.00:00 Show Introduction00:55 Sponsor Message01:42 Meet Jean La Mattina02:23 Cancer to Lymphatic Awakening04:29 Why Lymphatics Matter07:07 Books and Resources09:50 Tracking Symptoms With Journals13:56 Nutrition Career Origins17:26 Career Path to Lymphedema20:34 Evidence Over Fads23:30 Nutrition and the Lymphatic Gut Link26:21 Gut First Strategy27:27 Personalized Nutrition Reality28:21 Anti Inflammatory Basics30:22 Tracking Symptoms Signals31:45 Progression Debate Genetics33:54 Edema Controversy Care36:07 Medical Gaslighting Fight39:33 Awareness Social Media41:21 Early Screening Teens44:40 Why Diets Feel Like Failures48:46 Non Scale Victories49:27 Advice Resources WrapFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN, CLT, MPHCWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBThis episode is proudly sponsored by Lipoelastic Compression Don’t forget to check out Lipoelastic and use code STLpodcast for 10% off your next order.https://www.instagram.com/lipoelastic_usa/https://www.instagram.com/lipoelastic/Follow Jean Lamantia https://www.facebook.com/jean.lamantiahttps://jeanlamantia.com/ -
Navigating Awake Lipedema Surgery with Dr. Meegan Gruber 17.05.2026 52минGuest: Dr. Meegan Gruber, Board-Certified Plastic Surgeon, Tampa, FLEpisode Highlights & Timeline[1:42] – Meet Dr. GruberDr. Gruber introduces herself: 25 years in plastic surgery, ~10 years specializing in lipedema awake surgery based in Tampa, FL.[2:40] – Groundbreaking Research: University of Virginia StudyDr. Gruber announces an upcoming collaboration with Dr. Karol Gutowski at UVA to study lipedema at the molecular level – examining why lipedema cells behave the way they do. Surgeons like Dr. Gruber will contribute tissue samples (with patient consent) to help uncover what's happening at the cellular level.[4:54] – How Dr. Gruber Got Into Lipedema SurgeryShe shares how working with Art Lipo in Tampa exposed her to lipedema patients organically – they "came with the territory" of arm and leg procedures.[9:10] – Lipedema Surgery vs. Standard LiposuctionKey differences: lipedema fat is "hungrier" and more likely to regrow if not fully removed. Surgical planning must account for long-term behavior of remaining fat, especially in younger patients.[13:38] – Florida's 4-Liter Fat Limit ExplainedA clear breakdown of the 4-liter fat rule: it refers to extracted fat, not total aspirate (which includes fluid). Hospital-based procedures allow up to 10 liters. Recovery scales exponentially with volume removed.[22:33] – What Awake Surgery Actually Looks LikeStep-by-step walkthrough of the awake lipo + lift procedure for arms. Custom numbing fluid (with ropivacaine for 8-hour relief), no general anesthesia, and an interactive, patient-centered experience – "somewhere between the dentist and a spa."[35:10] – Splitting Up Surgeries: Lowers, Uppers & LiftsHow Dr. Gruber stages procedures by body weight, area, and goals. Legs typically require 2–3 separate sessions spaced at least 3 weeks apart.[36:23] – Post-Op Follow-Up & Traveling PatientsNext-day follow-up for garment fitting, negative pressure bandages, and how Dr. Gruber supports out-of-state patients with a direct line and nationwide colleague network.[51:10] – Why Awake Surgery Delivers Better Aesthetic ResultsThe real advantage: patients can stand up, flex, and point their toes during surgery, allowing Dr. Gruber to assess anatomy, correct asymmetry, and achieve a refined look impossible to achieve when a patient is under general anesthesia.[1:01:04] – Insurance: The Honest TruthDr. Gruber doesn't take insurance but helps with prior authorizations and letters. One patient successfully got 100% coverage by writing to her state senators. Discussion on "sick care society" and the challenge of accessing lipedema surgery.Follow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN, CLT, MPHCWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBThis episode is proudly sponsored by Lipoelastic Compression Don’t forget to check out Lipoelastic and use code STLpodcast for 10% off your next order.https://www.instagram.com/lipoelastic_usa/https://www.instagram.com/lipoelastic/Resources & LinksWebsite: www.drmeegangruber.com YouTube & Instagram: @DrMeeganGruberTLC Show: Awake Surgery — streaming on Hulu, Discovery+, and Paramount+ (includes a lipedema patient episode)https://www.facebook.com/meegan.gruber -
Navigating Lipedema: Samantha Waldrop's Inspiring Story 10.05.2026 1ч 1минSamantha’s Lipedema Journey: Self-Diagnosis, Insurance, Surgery, and Sharing the Lived ExperienceHosts Cindy and Kristy welcome Samantha, a 38-year-old Oklahoma public school administrator and mom of two, to share how she recognized body differences starting in seventh grade (first in her arms) and later in her legs, faced family criticism, and eventually self-diagnosed lipedema after developing severe autoimmune-like symptoms following breast implants and being dismissed by her surgeon. She recounts realizing her wedding photos had been photoshopped, pursuing official diagnoses in Oklahoma (including Dr. Ryan Morgan and PT documentation), and using conservative measures like vibration plates, manual lymphatic drainage, and pneumatic compression. After a three-year insurance process and multiple failed surgeon consults, she chose surgery with Dr. Azouz in Dallas to prevent progression, detailing four procedures in 2025 (legs, arms with brachioplasty, mini tuck/trunk, and thigh/calf/knee lifts) and recovery challenges. Samantha now advocates on TikTok by documenting real surgical realities and building community.00:00 Welcome to the Show00:55 Sponsor Message01:42 Meet Samantha02:27 Early Signs in Middle School05:37 Family Reactions and Early Legs Changes07:08 Implants and Autoimmune Spiral08:16 Researching and Finding Lipedema12:54 Wedding Photoshopped Wake Up Call15:44 Diet Exercise and Progression19:40 Getting an Official Diagnosis21:45 Insurance Proof and PT Tracking22:51 At Home Conservative Treatments27:30 Choosing Surgery and Consult Setbacks30:58 Surgeon Search Roadblocks32:05 Finding Dr Azouz33:46 Supportive Diagnosis Moment35:22 Insurance Packet Strategy38:15 Four Surgery Breakdown40:38 Recovery Complications42:00 Life After Pain44:32 Advocacy on TikTok50:24 Beyond Before After Photos58:54 Where to Follow Samantha01:00:38 Episode Wrap UpFollow us on Social media!!!Kristy's Contact information:IG https://www.instagram.com/dellalunawellness/FB Group https://www.facebook.com/share/g/1F3pseJKUd/?mibextid=wwXIfrWebsite Kristy Dellacroce, MS,OTR/L, MLD-C Dellalunawellness.comLipedema Advocate 856-297-7437Cindy contact informationFB: https://www.facebook.com/withcindyhowellPrivate FB Group: https://www.facebook.com/groups/7021999704562921IG: https://www.instagram.com/lipedema_withcindyhowell/Cindy Howell RN, CLT, MPCHWebsite: www.withcindyhowell.comLipedema advocate: 860-550-1161Top 5 Foods to Avoid for Managing Lipedema! Link: https://withcindyhowell.com/checklist/Free surgery course: https://l.bttr.to/6cATBThis episode is proudly sponsored by Lipoelastic Compression is key in managing lipedema — and finding pieces that are both supportive and comfortable makes all the difference.Don’t forget to check out Lipoelastic and use code STLpodcast for 10% off your next order.https://www.instagram.com/lipoelastic_usa/https://www.instagram.com/lipoelastic/Follow Samantha on Social Mediahttps://www.tiktok.com/@samanthawlipedema?lang=enYouTube @samanthawlipedema https://www.instagram.com/samanthawlipedema/
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